I apologise first,as this will likely be a rant, but I am still so upset I just have to share my experience of this morning.
I was diagnosed finally after decades of suffering by an excellent Rheumatologist as having Seronegative Sjogrens and possibly Lupus eighteen months ago and put on Depot Medrol Injections plus oral steroids when needed. This has given me some life at last, but when the injections wear off I am pretty bad again and the plan is to try Micophenolate next after the summer when I have three close family weddings to get through!
I visited my GP this morning to report on a great improvement following my large Depot injection last week and some tablets for the angina I get, but what followed was nothing but appalling!!!
I still can't quite believe it, maybe she was menopausal or having a breakdown!!!
My old GP retired last year after fifteen years of giving me wonderful care and sympathy despite no definitive diagnosis,but he was alone In the practice as being the only one who could actually think out of the box! Now the head of the practice is totally against all drugs, in fact people call him "Dr Paracetamol" as that is all he gives out. I also know three people who died under his care when bowel cancer was ignored as IBS and heart issues put down to stress resulting in sudden cardiac arrests , both fatal. I go to the woman under him, who has always tried to be pleasant but is under his thumb.
I innocently started to tell her I was a wee bit better when she started a shouting tirade about all my recent blood tests being normal so there was no way I should be taking strong drugs like steroids. After the summer we have to get you off "all that stuff" she shouted. I kept my cool, despite tears not far off and mentioned both the professors I see in Glasgow (I also have sphincter of Oddi dysfunction and pancreatitis) were happy with my treatment but no, she said she did not believe in seronegativity no matter what they said. My bloods were normal so I was well, and made me feel like an attention seeker and total freak who enjoyed taking all the drugs I have been on over the last thirty years, most of which helped me.
I tried to tell her I did not "like" having to take any drugs at all by choice but was ignored while she raved at me and showed me the door after my allotted seven minutes asking I get a cholesterol blood test as the only one not yet done.
I managed to get out ,then stunned went for a cuppa to the bookshop and dripped tears into my cup hoping no one would notice.I actually felt assaulted which must sound crazy ,but in the last few weeks until the injection last week I actually was so miserable that I was looking forward to being dead so I wouldn't feel so utterly tired any more nor have to take morphine every day. I am not usually a person who suffers depression but my goodness what a way to treat a patient!
I actually dread getting blood tests now as I know the reaction I will get when they are normal - I will be a freak, someone who makes a hobby of being ill all this life and spends all their waking hours looking up ailments in the Internet for fun!!
I have decided never to go back again and will seek out another practice where hopefully there will be some normal and hopefully human doctors!I have been there for over thirty years but the old good ones have all gone.
I am also seeing my good Professors again next week and seek their advice for help in the long term.
So sorry to off load all this, but now after two diazapan I feel less weepy and more able to cope, had a good cry when I got home, but had to stop as poor dog got upset with me upset and hubby was all set to storm in to the surgery looking for a heads to chop!!! He is going to leave the practice as well !
Thanks for listening if you have got this far!!!!
And thanks for this wonderful place to offload the agony! You just feel so alone, betrayed , angry and miserable and those so called health professionals just have no clue, do they?