I was told I have a connitive tissue disease and they are pretty sure it's SLE . I am 27yrs old and found this out in March of this year. I have also been told I have fibromyalgia, and neuropathy. All of my joints hurt and my skin hurts to touch . I keep telling my doctors about the skin hurting and the look at me like I'm crazy . My feet and fingers swell and they say it also have cts . I am on a cocktail of meds including plaquenil, quinacrine, topamax, buspirone, tramadol, Percocet, prednisone, zanaflex, and a baby aspirin everyday. I just find this ridiculous . I'm still in pain so this all doesn't seem to be working . I also found out that my b-6 is 400 and b-12 is 3100 both being almost 4 times what they are supposed to be . I'm not taking any supplements and my doctors say well we have never heard of someone's B levels being so high so we're not sure what to do. I'm New to all of this and am looking for some help . I feel very lost . I went to the foot doctor for some ankle pain then found out all of this . Any feedback would be greatly appreciated .
Thank you
Written by
urkatzmeow
To view profiles and participate in discussions please or .
I get fluctuating issues whereby touching areas is v painful (not classic FM areas). I wonder if you could tell me if this is similar to your connective tissues and what tests did you have ?
I also get swelling of fingers & feet.
Sorry my reply is a question rather than helpful to you.
Mine is more of an all over pain . Mainly my legs, arms,and rib areas . I have given over 160 tubes of blood this year so I thin they checked just about everything lol . I have an ANA of 320 with speckled pattern.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.