Hello my name is Katie
I was told I have a connitive tissue disease and they are pretty sure it's SLE . I am 27yrs old and found this out in March of this year. I have also been told I have fibromyalgia, and neuropathy. All of my joints hurt and my skin hurts to touch . I keep telling my doctors about the skin hurting and the look at me like I'm crazy . My feet and fingers swell and they say it also have cts . I am on a cocktail of meds including plaquenil, quinacrine, topamax, buspirone, tramadol, Percocet, prednisone, zanaflex, and a baby aspirin everyday. I just find this ridiculous . I'm still in pain so this all doesn't seem to be working . I also found out that my b-6 is 400 and b-12 is 3100 both being almost 4 times what they are supposed to be . I'm not taking any supplements and my doctors say well we have never heard of someone's B levels being so high so we're not sure what to do. I'm New to all of this and am looking for some help . I feel very lost . I went to the foot doctor for some ankle pain then found out all of this . Any feedback would be greatly appreciated .