Experiences with

Mepacrine

I guess my question is does mepacrine only affect the colpur on yr face or it is all over. Im so fed up of trying things and then having to deall with something else it just gets me down any experiences would really help. Thank you x

Dermatologist said combination of long-term use of steroids, Rituximab,Mepacrine any one of these or combination. I know with medical issues over last 11 years I should not be worried about hair loss but it is really getting me down. Any words of wisdom

Hey everyone I was diagnosis in may lasy year I'm on hydroxychlorquine 200mg twice a day steroids 15mg azathioprine 100 which has been incresed to 125 for 4 weeks and the 150 after that and 3 times a week I'm on Mepacrine for 3 months then that will become daily anyone else on mepacrine?

Yesterday was given mepacrine but its unlicensed and not used often. Im a bit freak out by this. Has anyone else had this medication or know anything about it. Any information would be appreciated. Thank you

Also if any of you are on alternatives to Hydroxychoroquine like Mepacrine if so are you still on Hydroxychoroquine or are you on a combination of Mepa and another drug? These are what I need to find out if anyone has any issues or answers would be most grateful. Thank you kind ladies and men

I am on 5mg maintenance Steroids/ Rituximab /Mepacrine for Lupus& Sjogrens. Any advice would be appreciated. X

I'm on hydroxychloroquine, mepacrine, Asprin, clopidogrel, Ikervis eye drops. I’ve never been offered A biopsy . anyone else had a similar experience? Any advice welcome Thanks

Hello Currently on HCQ 400mg Mepacrine 50mg Clopidogrel 75 Asprin 75 Ikervis eye drops having the most awful sacroilitis, steroids helped but off them now Anyone else suffered this and what treatment were you offered thank You

Also on 5mg maint steroids and Mepacrine also Helliocare photosensitivity tablets, blood pressure tablets, folic acid calcichew, Asprin.

I take methotrexate, mycophenolate mofetil, Hydroxychloroquine and Mepacrine, plus Amitriptyline and omeprazole. Please photos below. Thank you in advance. Wendy

I am on 6 monthly Rituximab Infusions, Mepacrine, Dermovate Cream, and maintenance Steroids 5 mg per day. Enjoy your Bank Holiday. X

I’m newly diagnosed as Type 2 diabetic (through steroid use) and have meds for that for the autoimmune diseases I take Steroids 10mg, Mepacrine, Apixaban, asprin, Azathioprine and DF118 (Dihydrocodine), when needed paracetamol/morphine. I can’t have HCQ or Gabba or Amatryptalines.

Once the paramedics left they went to my GP surgery which is on the road I live on and came back to say that I must stop taking Mepacrine and Hydroxychloroquine and other medicine for my Mixed Connective Tissue Disease and Lupus. I can only restart taking them once I felt better.

Does anyone take mepacrine? I have been prescribed this after having really bad constant headaches on hydroxychloroquine. How do you find it? Xx

Then I wasn’t getting better with it therefore i was put on Mepacrine . I had an adverse reaction and y whole body flared up with a itchy rash and blistered hands and feet like they had been in a fire . I’m now tying the quinorac again but still struggling .

I’ve just been given a prescription for mepacrine to add to my drug cocktail of hydroxycloriquine, mycophenolate, prednisolone and flecainide. The goal is to get a joint pain flare under control. Anyone have any success with this?

I was taken off medications including Mepacrine which really helped Sjogrens . Although brain fog, breathlessness has improved ( I felt Methotexrate increases symptons) my skin lupus symptoms/ flare up is getting worse and Sjogrens symptoms.

Taken off Imuran and Mepacrine. Due to see consultant tomorrow to discuss RITUXAN as Lupus and Sjogrens symptoms getting worse . Any advice. Many thanks.

I am on Hydroxychloroquine and just been put back on Mepacrine too. I have also been told to use Dermovate cream on the lesions.

I am on Mepacrine for over 2 yrs now with no problems. Really helped fatigue. have skin Lupus On Methotexrate 8 months. Monday I woke up with numb arm from elbow down and very unsteady when tried to walk . As I had a stroke in Jan thought it was happening again.