Nails: Does anyone have problems with their nails... - LUPUS UK

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Nails

Judylynne profile image
14 Replies

Does anyone have problems with their nails? I have had lupus for a number of years. I also have low thyroid and raynauds. My nails have been thin and break so they peel and split. It's not a major thing but they look awful and are painful. Just wondering if anyone has issues or am I by myself on this? Is there anything that can be done? Any products?

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Judylynne profile image
Judylynne
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14 Replies
nonancourt profile image
nonancourt

Hi there. Sorry to tell you - nothing helps! I have had this problem for over 20 years and have still not found any products that help! I have tried everything, spending a small fortune on lotions and potions, without success! It is horrible - I spend all my time hiding my hands from other people because my nails are so ugly. Do you have the same problem with your toe nails as well as your finger nails? My big toe nails are quite disgusting - broken flaky, misshapen and short! If you ever find a solution, I would be grateful if you would contact me. Good Luck!

nonancourt profile image
nonancourt in reply to nonancourt

Hi your post sounded just like me!!! I have not had decent nails for 30 years since being diagnosed with lupus. Toes are just as bad. I too have spent a small fortune on nail products ----- nothing helps!!

Yes this has always been a problem for me but I have noticed a slight improvement since starting Hydroxychloroquine. otherwise nothing really helps.

anbuma profile image
anbuma

hi Judylynne.i have had raynauds since 1994 and lupus symptoms in the last 3 years.recently my finger nails have become very brittle,breaking and splitting.only heard of this as a hypothyroid symptom-=could be lupus.not tried any products.

tintin49 profile image
tintin49

hi its funny that taking hydroxy does help. quite a lot. I have had dreadful nails for the last few years. then I was told I had lupus sle so put on hydroxy. they then started to grow but it took several months. they looked much better, then I stopped and they went down hill. I was on 2 tablets a day. but now on 1 every other day. my nails are not as good. I hate hydroxy as it makes my body ache really bad. gives me fibromyalgia. now I have heart problems and maybe some eye problems I may have to go on it again full strength. life on the lupus path

Purpletop profile image
Purpletop

Try dipping your fingernails in warm olive oil for half hour every day. You'll see a difference after few weeks. Try it - it works.

chrisj profile image
chrisj

My nails were in bad way before they diagnosed SLE, I have reynauds as well. They were thin, no substance to them. Since taking plaquenil/hydroxychloroquine, been on it for about 8 years, my nails have improved and the raynauds is much better, I dont feel the cold so much.

I also use an almond oil hand wash and cream and I'm convinced thats helped, almond oil strengthens nails, I'd recommend it...

adrian_holland profile image
adrian_holland

ok a weird one from left field, but I knew a luppie who used to swear by sitting with her fingers in a bowl of warm jelly once a week, she had amazing strong nails.

Vals-pal profile image
Vals-pal

I use Healthy Hoof - yes, it's used by equestrians for their horses! A pot lasts for ages and it's made by Gena Laboratories. I rub some into my cuticles every night with a big dollop of hand cream and sleep with cotton gloves on.

bcorbin526 profile image
bcorbin526

I have very thin peeling nails all my life nail hardens do not help. I go to nail salon. But you stated it they hurt I would talk to dr.

Kellyleg profile image
Kellyleg

Hi I have the same problem and I use silica.. Take one a day, the best one I have found is from holland and Barrett... Hope this helps as it has me. Xxx

USAhousewife profile image
USAhousewife

Sorry to tell you. . . But I've found nothing to help the peeling, brittleness or thin nails. I've tried a little bit of just about everything over the years, including drinking gelatin. I think it's just a part of Autoimmune diseases/

GEISHAGAL profile image
GEISHAGAL

Hi, I had in the past, issues with my nails. Diagnosed with low calcium & low vit d, daily calcium 1800 mg & 5,000 iu vit d. You have to see a doc & have your levels checked. I also have Hashimotos disease of the thyroid. They do nothing for it, guess that bad outweighs the good when meds are concerned. I have suffered with burning, numb feet for 10+ years and they hurt all the time. When I lie down, my legs go completely numb, spine-lumbar issues, scoliosis, CTD, SLE Lupus. I am a mess, the foot thing is maddening, what do you do for your feet? Is it spine related? I will do anything for relief-

Sun83 profile image
Sun83

Getting extra vitamin D from sunlight helped my thin peeling nails.

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