well I am having a good little spell and am currently undertaking research using the internet, emailing various organisations and talking with both medical experts and people who have the condition and am astounded by just how similar these all are.
I have emailed the medical advisor from the M.E association about my query over inoculations and development of "sneaky bugger syndrome" as well as other profesionals.
one thing that I have posed is has there ever been a joint working group on these conditions, and if not why not, as you guys know its near on impossible to get a yes you do have it or no you don't and then you see someone else and the diagnosis changes again. I am looking for support if there has not been the working group so the professionals can get together, define what is lupus, M.E, CFS post viral no ifs or buts, hopefully it would help all of us.
Need to have a lie down now please give your views, ideas etc so we can debate and move it forward ta mark.