Posts - LUpus Patients Understanding and Support | HealthUnlocked

LUpus Patients Understanding and Support

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Nose Sores

Hi all,I'm going through diagnosis at the moment for lupus/multi connective tissue disease and been put on hydroxychloroquine. I have a lot of worse symptoms,...

Hi all,I'm going through diagnosis at the moment for lupus/multi connective tiss...

NatalieMai

•2 years ago

10 Replies

Purple/ blue hands with Raynaud's?

Hi all! Does anyone get acracyanosis, a blueish purple discoloration of whole hand/foot (like my pic) with their Raynaud's and Lupus? I think I get both! It's...

Hi all! Does anyone get acracyanosis, a blueish purple discoloration of whole ha...

Hidden

•3 years ago

3 Replies

Non active lupus but still have the same symptoms

I’ve been told that my lupus is not active so how come I haven’t had any let up of the lupus symptoms. Anybody had the same?

I’ve been told that my lupus is not active so how come I haven’t had any let up ...

rafael

•4 years ago

2 Replies

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Raynaud phenomenon

Photo courtesy of VisualDx. Raynaud phenomenon is a vascular disorder characterized by intermittent arteriolar vasospasm of the digits, most often due to...

Photo courtesy of VisualDx. Raynaud phenomenon is a vascular disorder characte...

lupus-support1

Administrator•5 years ago

1 Reply

Mystery rashes - autoimmune related?

Hello, I just discovered this forum via reading someone’s post about their lacy red rash on their legs. I’ve been diagnosed with fibromyalgia, chronic venous...

Hello, I just discovered this forum via reading someone’s post about their lacy ...

Midori7103

•6 years ago

6 Replies

Skeletal Muscle Not a Major Factor in Lupus-related Fatigue, Study Suggests

Abnormalities in the skeletal muscle are not a major contributor to the fatigue experienced by systemic lupus erythematosus (SLE) patients, a study based on...

Abnormalities in the skeletal muscle are not a major contributor to the fatigue ...

lupus-support1

Administrator•6 years ago

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Skeletal Muscle Not a Major Factor in Lupus-related Fatigue, Study Suggests

URL: lupusnewstoday.com/2019/01/21/skeletal-muscle-not-major-factor-lupus/ Marisa WexlerJanuary 21, 2019 Skeletal Muscle Not a Major Factor in Lupus-related...

URL: lupusnewstoday.com/2019/01/21/skeletal-muscle-not-major-factor-lupus/ Maris...

lupus-support1

Administrator•6 years ago

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Brand new to this and odd symptoms

Brand new to this. Sores increasing in the roof of my mouth and lots of nighttime burning in wrists/hands with pressure/swollen feeling there too... Are these...

Brand new to this. Sores increasing in the roof of my mouth and lots of nighttim...

cleanandkeen

•7 years ago

1 Reply

Pain in Feet - SLE

Hi, Hoping I am not the only person experiencing this, but I have pain in my feet, particularly soles but overall, when walking. It's like my bones in my feet...

Hi, Hoping I am not the only person experiencing this, but I have pain in my fee...

Hidden

•8 years ago

5 Replies

I don't want to be this me no more

Help!! I've been down since November end of oct and now I'm always dizzy nausea and vomiting. I have weak arms every morning with flares in my wrist. How do...

Help!! I've been down since November end of oct and now I'm always dizzy nausea ...

Lilrose

•8 years ago

4 Replies

justjan

I am a 72 yr old female. Recently, dx w/lupus. Had a rash for a couple of yrs that my primary said was an allergy. My eye MD wanted me to see an allergist...

I am a 72 yr old female. Recently, dx w/lupus. Had a rash for a couple of yrs ...

justjan1944

•9 years ago

5 Replies

Cold Sweats and flushing! Symptoms of Fever but No Fever! So uncomfortable! Anyone experience this???

I have a strange question and wonder if anyone else has experienced this symptom. I have always had a very low immune system but I can be seriously ill and NOT...

I have a strange question and wonder if anyone else has experienced this symptom...

momof15

•9 years ago

8 Replies

Writing through Pain

I am a writer and now write mostly in the bed, propped up. I do travel as part of a way to earn a living and with pain management medications, I am able to do...

I am a writer and now write mostly in the bed, propped up. I do travel as part o...

SecretlyDisabled7

•9 years ago

3 Replies

Rash driving me nuts

Had this flaring up again get it on upper arms as well .Been told all my symptoms are lupus is this rash lupus ?

Had this flaring up again get it on upper arms as well .Been told all my symptom...

suzierwp330

•9 years ago

4 Replies

Tired all the time

I have lupus & nobody understands why I am tired all the time & my body hurts.

mistybuckley49

•9 years ago

33 Replies

Do any of my symptoms ring any bells for anyone suffering with Lupus/Pulmonary Fibrosis? What were your early symptoms with these diseases?

Hi, I'm new on here and wondered what other early symptoms you had. I am not diagnosed but Lupus runs in my family, one uncle passed away and another uncle was...

Hi, I'm new on here and wondered what other early symptoms you had. I am not dia...

denise4

•9 years ago

5 Replies

TIA at 53

Hi all new to this website and looking for support and answers. Had a TIA at 53 which came as a complete shock and still waiting for something to show up on...

Hi all new to this website and looking for support and answers. Had a TIA at 53 ...

Soulie123

•9 years ago

2 Replies

Periungual odeama

What is periungual odeama.is it significant to lupus please

amandajane76

•9 years ago

1 Reply

Raynards type 3

By all accounts I have raynards type 3.never heard of this grouping

amandajane76

•10 years ago

8 Replies

CNS Lupus & Noise Sensitivity

Hi everyone :) I haven't posted in ages, so I hope you're all well, or at least coping! I've been diagnosed with CNS lupus for a year and a half now, although...

Hi everyone :) I haven't posted in ages, so I hope you're all well, or at least ...

Bellaflowe

Volunteer•10 years ago

22 Replies

Standing

I ve started to have issues standing for more than a few minutes.my feet go a funny blue ish/red colour and boy do my low limbs hurt.is this common ? I have a...

I ve started to have issues standing for more than a few minutes.my feet go a fu...

amandajane76

•10 years ago

3 Replies

Need to understand my result I have an appointment June 30 but it is driving me crazy not knowing

Can anyone tell me what my test result mean: Procedure: Homogeneous Pattern LC Results 1:160 Pattern: Homogeneous (smooth) Histone Antigen Detected...

Can anyone tell me what my test result mean: Procedure: Homogeneous Pattern LC...

Bamasoul

•10 years ago

7 Replies

Mtx and sore throat

Hi. I've been on mtx for 4 weeks and all the literature says that if you develop a sore throat to see the dr straight away. I have a sore throat and general...

Hi. I've been on mtx for 4 weeks and all the literature says that if you develop...

tazzydevil

•10 years ago

2 Replies

What is happening to me? Severe mood swings!

Hi, I've been struggling with really bad mood swings for awhile. I can't explain them or why I get so angry sometimes and react irrationally. I get a lot of...

Hi, I've been struggling with really bad mood swings for awhile. I can't explain...

Annalouk

•10 years ago

7 Replies

Flu symptoms?

I have sle and have managed well for about 5 years with occasional flares. But for the past 5 months I have been in a constant flare. And the past week I feel...

I have sle and have managed well for about 5 years with occasional flares. But f...

Emms1234

•10 years ago

23 Replies

Is this related to Lupas

Hi have come up with little red dots on my skin all sudden like bit blood there. Anyone with Lupas have this? I have another autoimmune disease called...

Hi have come up with little red dots on my skin all sudden like bit blood there....

Katrinapidd

•10 years ago

1 Reply

Lupus and allergies

I was diagnosed with Discoid Lupus in Guatemala in 1997. I stop smoking, taking sun baths and tried to relax. I moved to England in 2009 and (thanks to) less...

I was diagnosed with Discoid Lupus in Guatemala in 1997. I stop smoking, taking ...

LatinZest

•10 years ago

10 Replies

Feeling annoyed

Went to see my GP today as my back/hip pain is getting worse even when taking cocodamol and gabapentin, and not at the pain clinic till march,only been waiting...

Went to see my GP today as my back/hip pain is getting worse even when taking co...

Dawn1170

•10 years ago

4 Replies

Feeling flu like for past month

Wondering if this has or is happening to anyone else,it.feels like I have the flu for past.month, starts in morning I take my tramedol after hour feel...

Wondering if this has or is happening to anyone else,it.feels like I have the fl...

stacymr

•10 years ago

2 Replies

Lupus & pain in my heel

I have SLE & for the past couple of months my heel has become so painful I can't even rest it on the settee or in bed. I have to put a pillow under my leg....

I have SLE & for the past couple of months my heel has become so painful I can't...

QueenV

•10 years ago

4 Replies

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Posts - LUpus Patients Understanding and Support | HealthUnlocked

LUpus Patients Understanding and Support

Symptoms posts

Nose Sores

Purple/ blue hands with Raynaud's?

Non active lupus but still have the same symptoms

Raynaud phenomenon

Mystery rashes - autoimmune related?

Skeletal Muscle Not a Major Factor in Lupus-related Fatigue, Study Suggests

Skeletal Muscle Not a Major Factor in Lupus-related Fatigue, Study Suggests

Brand new to this and odd symptoms

Pain in Feet - SLE

I don't want to be this me no more

justjan

Cold Sweats and flushing! Symptoms of Fever but No Fever! So uncomfortable! Anyone experience this???

Writing through Pain

Rash driving me nuts

Tired all the time

Do any of my symptoms ring any bells for anyone suffering with Lupus/Pulmonary Fibrosis? What were your early symptoms with these diseases?

TIA at 53

Periungual odeama

Raynards type 3

CNS Lupus & Noise Sensitivity

Standing

Need to understand my result I have an appointment June 30 but it is driving me crazy not knowing

Mtx and sore throat

What is happening to me? Severe mood swings!

Flu symptoms?

Is this related to Lupas

Lupus and allergies

Feeling annoyed

Feeling flu like for past month

Lupus & pain in my heel

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