Posts - LUpus Patients Understanding and Support | HealthUnlocked

LUpus Patients Understanding and Support

3,421 members • 1,257 posts

All posts for March 2015

PIP Tribunal - was awarded then taken away all within 2 months!!

Hi, I have just submitted forms to go to tribunal to appeal my PIP decision. I applied in June (ish) time last year, had a medical (Capita) in October last...

Hi, I have just submitted forms to go to tribunal to appeal my PIP decision. I a...

•9 years ago

Summer time

As a lot of people look forward to summer.... I don't...x Sunblock becomes my best friend. I'm now taking anti rejection drugs, Mycophenolate mofetil 2000mg...

As a lot of people look forward to summer.... I don't...x Sunblock becomes my be...

Sempafidelis1970

•9 years ago

Dryness in intimate area.

Hi, this post is a bit sensitive but I was wondering if anyone else has problems with vaginal dryness especially in the outer lips. It gets so bad it feels...

Hi, this post is a bit sensitive but I was wondering if anyone else has problems...

•9 years ago

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Diagnosed with lupus

Has anyone been told that sle will over the years, will burn itself out, was diagnosed many years ago affected major organs, blood vessels, blood, joints, and...

Has anyone been told that sle will over the years, will burn itself out, was dia...

•9 years ago

Can a UTD sufferer qualify for PIP?

Hi, On paper, my rheumatologist ticks a box that says 'undifferentiated connective tissue disease with Sjögren's syndrom' but during consultations he talks...

Hi, On paper, my rheumatologist ticks a box that says 'undifferentiated connect...

•9 years ago

Which medication next?

I am wondering what other peoples experience has been as you progress through medications. Since SLE diagnosis 8 years ago have been taking 5mg prednisolone...

I am wondering what other peoples experience has been as you progress through me...

•9 years ago

Has anyone seen Professor Cope at Guys Hospital? As good as D'Cruz??

I was referred about four weeks ago and my appointment is next week. I wanted to see PRof D'Cruz but have been assigned to PRof A Cope in rheumatology. Can...

I was referred about four weeks ago and my appointment is next week. I wanted to...

•9 years ago

Not sure if it's Lupus or RA

Hi guys/gals, New to the website. I have been having pain in my wrist and ankles, then in the next two years I experienced swelling in my legs, hair loss,...

Hi guys/gals, New to the website. I have been having pain in my wrist and ankle...

•9 years ago

Is this related to Lupas

Hi have come up with little red dots on my skin all sudden like bit blood there. Anyone with Lupas have this? I have another autoimmune disease called...

Hi have come up with little red dots on my skin all sudden like bit blood there....

•9 years ago

Capillaroscopy: hemorrhages on six fingers but "totally normal picture"

Dear all, Yesterday I had the capillairoscopy, the vascular assistant “scanned” four fingers on each hand (not the thumbs) with 100x enlargement and two...

Dear all, Yesterday I had the capillairoscopy, the vascular assistant “scanned”...

•9 years ago

Lupus and allergies

I was diagnosed with Discoid Lupus in Guatemala in 1997. I stop smoking, taking sun baths and tried to relax. I moved to England in 2009 and (thanks to) less...

I was diagnosed with Discoid Lupus in Guatemala in 1997. I stop smoking, taking ...

•9 years ago

Can't Get Right!

Days like this make me sad. I feel like I'm here but not, too tired to move, and every muscle feels like jelly and life is passing me by. I try to fight but...

Days like this make me sad. I feel like I'm here but not, too tired to move, and...

•9 years ago