Pain in Feet - SLE

Hi, Hoping I am not the only person experiencing this, but I have pain in my feet, particularly soles but overall, when walking. It's like my bones in my feet are collapsing. I'm mostly shoeless, so I can not pinpoint what could be causing the pain. Pain is especially strong when I am shoeless. I'm afraid my doctor will dismiss me, since the symptom may not be common for people with Lupus or on Lupus meds. Thanks in advance for your response.

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  • Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

    My advice is to go and see your doctor because only s/he can diagnose you. Having said that, this may be of some help.

    Plantar fasciitis (PLAN-tur fas-e-I-tis) is one of the most common causes of heel pain. It involves inflammation of a thick band of tissue that runs across the bottom of your foot and connects your heel bone to your toes (plantar fascia).

    Plantar fasciitis commonly causes stabbing pain that usually occurs with your first steps in the morning. As you get up and move more, the pain normally decreases, but it might return after long periods of standing or after rising from sitting.

    The plantar fascia is a tough and flexible band of tissue that runs under the sole of the foot. It connects the heel bone with the bones of the foot, and acts as a kind of shock absorber to the foot.

    Sudden damage, or damage that occurs over many months or years, can cause tiny tears (microtears) to develop inside the tissue of the plantar fascia. This can cause the plantar fascia to thicken, resulting in heel pain.

    The surrounding tissue and the heel bone can also sometimes become inflamed.

    pain relief – using an icepack on the affected heel (notif you have Raynaud's); or heat; and taking painkillers, such as non-steroidal anti-inflammatory drugs (NSAIDs). I recommend you use a NSAID gel (eg Voltorol gel or cream) which can be rubbed into the sole of your foot.

    From adolescents, the soles of my feet would be bright red and very painful to walk!

    We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

    By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

    When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

    Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

    I look forward to talking with you more!

    Sometimes we need to talk to people who understand and who are not family or friends.

    With good wishes!

    Ros

    Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

  • You are not alone! My mother (diagnosed 28 years ago) and I (diagnosed 13 yrs ago) both have excruciating pain in our feet. After years of complaining and being told that it's just plantar fasciitis, We both had MRIs done and we both had the same results...bone edema. I had surgery to "fill" the bones (called subchondroplasty) in June and I am having some positive results but still having pain. But we both also have pain in our feet that is other than bone pain and it's especially painful if we have to have long hours on our feet.

    My increase/or decrease in foot pain is directly linked to the severity of my flares....I use it as my personal gauge on how sick I am and when it's time to call my doctor.

    I'm scheduled to see a doctor in Boston next month that specializes in bone edema. Keeping my fingers crossed.

  • My dr said it is arthritis , but I am not sure that is correct

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