Posts - LUpus Patients Understanding and Support | HealthUnlocked

LUpus Patients Understanding and Support

3,421 members • 1,258 posts

All posts for August 2016

Blood markers

I am jus getting over a very bad chest infection, on having my bloods tested and results was CRP 203 and ESR 79. After several courses of antibiotics and on...

I am jus getting over a very bad chest infection, on having my bloods tested and...

•8 years ago

Social networking for patients

Social networking for patients ; doi: http://dx.doi.org/10.1136/bmj.i4201 (Published 10 August 2016) Cite this as: 2016;354:i4201 Is social media...

Social networking for patients ; doi: http://dx.doi.org/10.1136/bmj.i4201 (Publ...

Administrator•8 years ago

Does anyone have cutaneous lupus?

I cant find anyone with this, without systemic involvement, even though I was ANA positive, and have a lot of the other symptoms of systemic lupus. I...

I cant find anyone with this, without systemic involvement, even though I was AN...

•8 years ago

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This is my first flare up, resulting in a diagnosis 6 months ago. I have had no remission for 10 or 11 months, & no sign of one anytime soon. How long does...

This is my first flare up, resulting in a diagnosis 6 months ago. I have had n...

•8 years ago

You ever just feel like making fun of yourself laugh at lupus I did today I'm sick of being gloomy

So my niece asked " ate you going to my cheerleading practice. I said" is it outside? She said "yes. She's 8 .So anyways I had to say "no,but I also added all...

So my niece asked " ate you going to my cheerleading practice. I said" is it out...

Julietsmombless2015

•8 years ago

I feel like a ticking time bomb with a flare-up it's terrible

I have to watch the way I talk to people I don't want to come off snippy I'm just in pain. I try to keep my life drama free Eben tho is more of a damn reality...

I have to watch the way I talk to people I don't want to come off snippy I'm jus...

Julietsmombless2015

•8 years ago

A lot of people are scared of the word " chemo. .has anyone had it for lupus?

My doctor mentioned talking about this my next appointment that's in a couple weeks. Now all my other problems ate magnified because I'm scared of that...

My doctor mentioned talking about this my next appointment that's in a couple we...

Julietsmombless2015

•8 years ago

This anxiety and stress is making everything worse GI problems horrible

Like from my throat all the way through my entire stomach feels swallowed and messed up.im so nauseous constantly. I feel like everything is getting worse and...

Like from my throat all the way through my entire stomach feels swallowed and me...

Julietsmombless2015

•8 years ago

Man's Search for Meaning

Viktor Frankl wrote a book entitled "Man’s Search for Meaning." Frankl had survived the Holocaust and made observations as to why some people survived and...

Viktor Frankl wrote a book entitled "Man’s Search for Meaning." Frankl had survi...

Administrator•8 years ago

Without wedding jitters you would think this wouldn't be so stressfull

People that were once thought of as family ended up being like a villain from a Disney movie. Trying to ruin as much as they can.As if having a flare up...

People that were once thought of as family ended up being like a villain from a...

Julietsmombless2015

•8 years ago

Going to sleep with nice thoughts listening to" turning page my ceremony song

That song just says it all. I love the lyrics feel that way feel that way in my own heart and it expressed it so perfectly.Our first wedding dance song is...

That song just says it all. I love the lyrics feel that way feel that way in my ...

Julietsmombless2015

•8 years ago

My appointment with my doctor for Lupus is August 18th

I know he's going to do the usual ask me about my symptoms and read up on a blood panel test but what I really want to discuss with him it's how the brain fog...

I know he's going to do the usual ask me about my symptoms and read up on a bloo...

Julietsmombless2015

•8 years ago

7 great ways to help you get a better night’s sleep

Need more sleep? These drug-free trackers, sensors, devices and apps will help you catch a few more zzzz's and (maybe even) cure your insomnia. By Viva Sarah...

Need more sleep? These drug-free trackers, sensors, devices and apps will help y...

Administrator•8 years ago

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I'm tired all day

Them here it is 4 am and I'm up why can't I stay asleep

Them here it is 4 am and I'm up why can't I stay asleep

Julietsmombless2015

•8 years ago

Blast Beyonce " I'm a survivor

And relax 5 minuets. ..okay feel a spiritual feeling lifting the better.Give it a try and sing.

And relax 5 minuets. ..okay feel a spiritual feeling lifting the better.Give it...

Julietsmombless2015

•8 years ago