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LUpus Patients Understanding and Support
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TIA at 53

Hi all new to this website and looking for support and answers. Had a TIA at 53 which came as a complete shock and still waiting for something to show up on the normal results of blood, MRI and ECG test. 4 weeks down the line and still no further on and scared I may have another attack. Whilst googling to find out what had happened to me I came across Hughes syndrome and the symptoms rang bells with me. Prior to my TIA I had been experiencing tinnitus in my ear for over 12 months and experiencing joint stiffness in my hips toes and fingers. Also memory fog and a headache that lasted 2 weeks solid and still continue after my attack. Very scared at the moment with no answers and need to get on with living my life .

2 Replies

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

I am sorry to read your story and can understand if you are feeling anxious and confused.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

There is a forum specially on Hughes Syndrome

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

If you have any problems, email me here: roz [at] [lupus-support] [dot] [org] [dot] [uk]


Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.


Ive had a stroke due to factor 5 lieden thombophelia. That folloewd a DVT in my leg a year prior. They told me I have Lipus SLE. I was treated by a hemy/oncilogist. Thry tild me I definitely have lupus SLE.im sorry for my typing thr stroke has affect on so manyvthings. Does snyone elee have factor 5 and SLE? I cannot put things together as my spatial abilities have been destroyed by the sttoke


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