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Living with Interstitial Lung Disease (ILD)

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Mycophenolate

Hi all I have Hypersensitivity Pneumonitis Interested to know how others get on with Mycophenolate? It seems to make me incredibly drowsy ie really...

Hi all I have Hypersensitivity Pneumonitis Interested to know how others get o...

Tawny10

•11 days ago

1 Reply

Hi everyone Happy Mayday

Hi everyone Sorry Ive been away for so long Ive not been well at all & having to do my 2 litres oxygen survivial days (except today as its bank hol) Ive...

Hi everyone Sorry Ive been away for so long Ive not been well at all & hav...

horseygirl_0103

•1 month ago

3 Replies

Re introduction ILD

Hi everyone My name is Sara sorry ive been away for so long Ive been in & out of hosputal over the dangerous drop of my oxygen levels This is my 11the stay...

Hi everyone My name is Sara sorry ive been away for so long Ive been in & out of...

Sara_2611

•3 months ago

7 Replies

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Partner with lung disease

My partner has several ailments. Prostate cancer, heart failure, etc and interstitial lung disease. He was taking methotrexate, last may he went in hospital...

My partner has several ailments. Prostate cancer, heart failure, etc and interst...

Arniestal

•3 months ago

2 Replies

NINTEDANIB (OFEV)

I have RA and rheumatoid ILD. I started taking nintedanib in July last year, I had a medication review in January and I explained all the side effects I was...

I have RA and rheumatoid ILD. I started taking nintedanib in July last year, I h...

Bonchops10

•3 months ago

1 Reply

Flying

Hi has anyone flown with pulmonary fibrosis to Canada taking portable ambulatory Imogen gadget x

Hi has anyone flown with pulmonary fibrosis to Canada taking portable ambulat...

Currygirl

•4 months ago

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HARMONICA CLASSES & NEW WHEELCHAIR

Hi The Astham/Lung dsease UK has set up a set of harmonica classes which started last week .to strenthen the breathing I loved it -it . its on a...

Hi The Astham/Lung dsease UK has set up a set of harmonica classes which sta...

horseygirl_0103

•4 months ago

1 Reply

Hi Im back sorry I havent been on for a while

Hi I havent been on for a long time My ILD specialist has got me an appointment as a day patient at sheffield hospital on 1st feb Thankfully an...

Hi I havent been on for a long time My ILD specialist has got me an appoi...

horseygirl_0103

•5 months ago

1 Reply

New Member - Progressive Pulmonary Fibrosis

I'm posting for my Mom, who is 88 and lives with me. She was diagnosed a year ago with ILD- Fibrosis. She's on oxygen 24/7 ( but only 2 liters). Her O-sat...

I'm posting for my Mom, who is 88 and lives with me. She was diagnosed a year ag...

Aerobics-Instructor

•7 months ago

4 Replies

OXYGEN CONCENTRATORS

Hi All I have now got 2 oxygen concentrators in my house one in my lounge & one in my bedroom ,& my prescription is it must be up on 4 litres whilst im...

Hi All I have now got 2 oxygen concentrators in my house one in my lounge & ...

horseygirl_0103

•7 months ago

3 Replies

Morphine reaction.

hi all, Been having this chronic IPF cough for 2 months now and tried everything including the kitchen sink at it to no avail. GP suggested, as another throw...

hi all, Been having this chronic IPF cough for 2 months now and tried everythin...

Mrbojangles

•7 months ago

1 Reply

Newbie with IPF

Hi I have just joined, my name is Hazel and I live in West Sussex. I was diagnosed with IPF in June this year and was started on Nintedanib in September...

Hi I have just joined, my name is Hazel and I live in West Sussex. I was diag...

Hazel-mary

•7 months ago

11 Replies

Hi Sorry Ive been away for so long

Hi everyone Sorry I've not been around for ages -Been in & out of hospital because of my oxygen levels dangerously dropping AGAIN When I came out of...

Hi everyone Sorry I've not been around for ages -Been in & out of hospital be...

horseygirl_0103

•8 months ago

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introduction

Hi guys Apologies I shouldve introduced myself a little bit first Im from the UK & also have epilepsy & high blood pressure My favourite sport is...

Hi guys Apologies I shouldve introduced myself a little bit first Im from the...

horseygirl_0103

•10 months ago

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HI EVERYONE

I was diagnosed with ILD in 2019 -im on mycophenalate for it & having regular blood tests I have to use Salmetorol & salbuterol sprays to help me when Im...

I was diagnosed with ILD in 2019 -im on mycophenalate for it & having regular ...

horseygirl_0103

•10 months ago

2 Replies

ILD and weight loss

I have been existing with ILD for over 7yrs now and the condition has started to become progressively worse. I am 63yrs old and with continuous steroids and...

I have been existing with ILD for over 7yrs now and the condition has started to...

craftyone

•1 year ago

1 Reply

Pirfenidone side effects

I’ve been on Nintedanib for some time now but may be offered a switch to Pirfenidone when I next speak to my consultant. Has anyone had any side effects from...

I’ve been on Nintedanib for some time now but may be offered a switch to Pirfeni...

Bee61

•1 year ago

3 Replies

Apparently they knew of my coronary artery disease as far back as September.😡

Yet, no drugs or therapy were suggested or prescribed which may have prevented the stroke i subsequently had in mid January. I am one angry bunny...

Yet, no drugs or therapy were suggested or prescribed which may have prevented t...

Mrbojangles

•1 year ago

1 Reply

Interstitial pneumonitis secondary to auto immune disease

I started a reducing dose of Prednisolone January 2021 and also Mycophenolate in January 2021. I dont get breathless or any other symptoms except occasional...

I started a reducing dose of Prednisolone January 2021 and also Mycophenolate in...

maisied

•2 years ago

4 Replies

CHEST Oxygen Therapy Guides!

Hello Everyone! CHEST would like to share patient related guides for navigating and understanding Oxygen Therapy: Getting Started:...

Hello Everyone! CHEST would like to share patient related guides for navigating...

Mel_CHEST

Partner•2 years ago

Be the first to reply

New Diagnosis

Hi. I’m new to this forum, my husband just got diagnosed with Hypersensitivity Pneumonitis yesterday. Does anyone else on here have this form of ILD? I’m...

Hi. I’m new to this forum, my husband just got diagnosed with Hypersensitivity P...

DebsnAlf

•2 years ago

4 Replies

Flare advice

Hi there. I'm having a Flare up of my ILD for two weeks now taking 30mg Prednisone, usually I see improvement after 1zt course but I'm on my 2nd pack and...

Hi there. I'm having a Flare up of my ILD for two weeks now taking 30mg Predni...

Pilotlight

•2 years ago

7 Replies

Community Guidelines:

Welcome to the CHEST Foundation Interstitial Lung Disease (ILD) Community for support of Interstitial Lung Diseases (ILD)! We’re very glad you have chosen to...

Welcome to the CHEST Foundation Interstitial Lung Disease (ILD) Community for su...

Mel_CHEST

Partner•2 years ago

1 Reply

Saw cat scan of lungs for the first time, but not sure how to interpret them.

Yesterday, I saw my chest cat scan for the first time. I was at a consultation with a neurosurgeon regarding a spinal cord stimulator. My rheumatologist told...

Yesterday, I saw my chest cat scan for the first time. I was at a consultation w...

eternalgardener

•2 years ago

4 Replies

Introduce yourself!

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like. Feel free to ask your own questions here:...

Why not leave a short comment below and introduce yourselves. Give as much or as...

Hidden

•2 years ago

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Welcome to HealthUnlocked

We are the world’s largest online support network, connecting you to others with the same health needs and long-term conditions. Our network is made up of...

We are the world’s largest online support network, connecting you to others wit...

MaddieHU

HealthUnlocked•2 years ago

2 Replies

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Living with Interstitial Lung Disease (ILD)

Home

About

Members

Mycophenolate

Hi everyone Happy Mayday

Re introduction ILD

Partner with lung disease

NINTEDANIB (OFEV)

Flying

HARMONICA CLASSES & NEW WHEELCHAIR

Hi Im back sorry I havent been on for a while

New Member - Progressive Pulmonary Fibrosis

OXYGEN CONCENTRATORS

Morphine reaction.

Newbie with IPF

Hi Sorry Ive been away for so long

introduction

HI EVERYONE

ILD and weight loss

Pirfenidone side effects

Apparently they knew of my coronary artery disease as far back as September.😡

Interstitial pneumonitis secondary to auto immune disease

CHEST Oxygen Therapy Guides!

New Diagnosis

Flare advice

Community Guidelines:

Saw cat scan of lungs for the first time, but not sure how to interpret them.

Introduce yourself!

Welcome to HealthUnlocked

Search posts

Pinned Posts

Archive

Posts - Living with Interstitial Lung Disease (ILD) | HealthUnlocked

Living with Interstitial Lung Disease (ILD)

Home

About

Posts

Members

Mycophenolate

Hi everyone Happy Mayday

Re introduction ILD

Partner with lung disease

NINTEDANIB (OFEV)

Flying

HARMONICA CLASSES & NEW WHEELCHAIR

Hi Im back sorry I havent been on for a while

New Member - Progressive Pulmonary Fibrosis

OXYGEN CONCENTRATORS

Morphine reaction.

Newbie with IPF

Hi Sorry Ive been away for so long

introduction

HI EVERYONE

ILD and weight loss

Pirfenidone side effects

Apparently they knew of my coronary artery disease as far back as September.😡

Interstitial pneumonitis secondary to auto immune disease

CHEST Oxygen Therapy Guides!

New Diagnosis

Flare advice

Community Guidelines:

Saw cat scan of lungs for the first time, but not sure how to interpret them.

Introduce yourself!

Welcome to HealthUnlocked

Search posts

Pinned Posts

Archive