Nintedanib

[Tawny10]

Interested to know how well others get on with Nintedanib?

Since starting on it in March I have been feeling ill most days (like coming down with flu). It seems to be worse about 5 hours after taking it (day & night)……

[Suzie42]

I've just seen your post. So sorry nobody has replied to you as yet. There aren't so many of us on the site so probably not been seen. I have taken Nintedanib for a year when I was first diagnosed back in 2020 it made me feel awful and I was changed after a year to Pirefidone which suits me better.

[horseygirl_0103 in reply to Suzie42]

Sorry to hear that I take Nintedanib for a while now & had no side effects at all -even when I first started it

[Hazel-mary]

Hi Tawny10

I have pulmonary fibrosis, diagnosed 18 months ago, I was put on nintedanib but it effected my liver so I had to come off it after a month. I am now on pirfenidone and am managing the side effects of nausea with anti sickness tablets and acid reflux anti acid tablets.

Have you spoken to your dr about the side effect you are experiencing

Take care

Hazel

[horseygirl_0103 in reply to Hazel-mary]

do you think you may be allergic to it-Ive had no probs at all

[horseygirl_0103]

Im getting on ok with it - Ive had no side effects at all.- I guess everyone reacts differently.