I read all the time of peoples counts going up by the hundreds after ivig drip mine only went to 210 any thoughts please obviously mine have ...
Is it safe to just take Promacta 50mg every other day since my platelets are high and I don't have a lower dose.
It is day 45 post my every 2 week IVIG and dex pulse since may 2017 when I was diagnosed with ITP and I hope to keep off the IVIG! Platelet C...
ITP diagnosed in Pregnancy
Somewhere in depression looking at my wife in this situation what we have never imagined at this stage of life at least but looking at you gu...
Don’t stand so close to me!
However, my 3 month CLL check at Mayo came back with a dropped neutrophil count as well as a dropped hemoglobin count from last time - all fr...
48 year old male just diagnosed with ITP 4 weeks ago
Thought I would register myself with the ITP Support Association and tell my story here. Following the blood tests I was rung by the out of h...
Car-T TV special. National Geographic break through series.
1 hour on Car-T. Main guy discussed had CLL....
Hello there, After six years of terrible infections, including shingles, strep throat, several pneumonia trips to the hospital, including int...
Leukeran (Chlorambucil) Rash?
In May of this year, I was diagnosed with Stage III CLL, and then a CLL specialist bumped that to Stage IV....
IVIG FOR PMR
Has anybody tried intravenous immunoglobulin infusions For PMR? My rheumatologist wants me to try it....
CD38 POSITIVE AND ZAP -70 POSITIVE
New to this forum but not new to CLL as I was diagnosed in Sept of ' 07 and so far no treatment but rather watch and wait. I was recently rev...
Life or death... Or IVIG.
My last visit to my last oncologist said a low level of CLL was back in my blood, this new oncologist found NONE....
Fall i platelets count after ivig treatment
Im worried now please comment is this fall and rise is common in itp...
Just wondering how people did with IVIG infusions. I've had lots of sinus infections over the past 3 years so doc thought I should start IVIG...
Does IVIG help fatigue?
So last week I was having the worst fatigue so far apart from when I had pneumonia. I’ve taken antibiotics for a few days now and the infecti...
11 year old son ITP
a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta....
Stay positive x
Hi I had itp years ago and after so long thought I was home and dry....
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and IVIG isn't hol...
If that happens I know there are drugs for it that can cause hair loss among other things and if I have to start taking drugs for cll it woul...
I am a year and a half post FCR, and it has worked despite the fact that I am unmutated....
Hi, 66 and diagnosed with Primary Immune Dificiency in past 18 months while in hospital for pnemonia. Fast forward, several more pneumonias, ...
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