I have never had a blood clot, I tested positive for beta 2 glycoprotein 5 times 12 weeks apart, have had 2 early miscarriages 10-11wks and 1 ectopic pregnancy, livedo recticularis. Based off this my rheumatologist diagnosed me with antiphospholipid syndrome. Then I seen professor d cruz and he said I don't feel I need to do anymore tests I believe you have antiphospholipid syndrome. The only thing he was concerned about was I was on warfarin and I have never had a clot and to maybe speak to a hematologist. The reason I was tried on warfarin is because I have a movement disorder and wanted to try and see if it would help if my neurological symptoms are caused by aps
So I seen a hematologist today who said I don't meet the criteria for a APS as beta 2 glycoprotein numbers are not high (but positive) even though on the test results it was highlighted as High next to it) and igg is not positive only Igm, ectopic is not part of criteria for miscarriage (ectopic was the 3rd loss I had) I haven't had a clot and livedo recticularis is not part of the criteria. But then in the next breath said people can be zero negative and has aps, but discarded the fact I consistently tested positive for beta 2 glycoprotein 5 positive test over a year. I feel like the rheumatologist will listen to her and now I'll be left with the possibility of a clot in the future.
