To take blood thinners or not????

[Sickallthetime]

Good morning all! So I have a question here? I'm praying someone can answer my questions..... I was tested for Hughes Syndrome and the doctor office only tested 2 and those came back negative. So they think I'm crazy. Anyways, I've been on Warfram since September for a blood clot that they are saying I inflected onto myself, because I drove 1800 miles in a car. The blood clot is gone now, however, since I have been on blood thinners the doctors haven't been able to get my INR levels stable? Therefore, I was sent to a new doctor who decided after the 1st visit that I didn't need to be on blood thinners anymore. I had a procedure that required me to be off of the blood thinners for 5 days. I was expected to have a blood test done before the procedure, my INR levels were 0.9. Now, here is where I want to ask, what is a normal range for someone who isn't on blood thinners and is this something I should worry about? I've requested to see a different doctor since I feel like this doctor doesn't know too much about my conditions and made a judgment call without understand my medical history. I'm concern if I should go back onto the blood thinners while waiting for me to meet with a specialist in July. Thoughts here?

[MaryF Administrator]

HI, it is crucial that somebody who understands the disease understands your needs: apsaction.com/ and I am sure you will get other answers. MaryF

[Sickallthetime in reply to MaryF]

Okay, I'm not sure I understand? I read the article on the front page. Where did you want me to read? Sorry I must be not understanding.

[MaryF Administrator in reply to Sickallthetime]

Are you in the USA? If so contained on the link I posted above are doctors who understand the condition in the USA. MaryF

[Sickallthetime in reply to MaryF]

Yes, I love in the U.S.A. Iowa

[Sickallthetime]

Thank you for this answer.