Prof Cohen

[GillyA]

Just had a letter saying Prof Cohen at UCLH has retired and all patents will be reviewed 😟

[Star13]

Yes she told me three weeks ago it was her last clinic that day. I’m devastated. 😢 All the good ones are retiring. I haven’t had a letter about being reviewed, that is a concern😳I hope they are not going to do what Guys did and discharge everyone.

[Sand1985 in reply to Star13]

I thought guys had a dedicated aps clinic or is that not the case? Which london hospitals do have a dedicated aps clinic then?

[Star13 in reply to Sand1985]

Both Guys and UCH do have APS clinics but Guys were overwhelmed with new patients after the pandemic and had to discharge a great majority of patients to make way for new ones. The synic in me however thinks that was more about money because they get more money for new patients than they do for existing ones. Now I’m wondering with a change of management at the helm at UCL APS if they will do the same to save money. Let’s hope not.

[Sand1985 in reply to Star13]

Oh I see thanks for sharing. Let’s see what happens at uclh as I’m there too.

[MaryF Administrator]

Thanks for letting us know, must be a worry for you. MaryF

[Still-smiling]

Hannah Cohen was the APS clinic and a world expert. Thanks to her had plasma exchange and rituximab. Occasionally would see rheumatology dreadful used to deny I have APS. The letter suggests other departments, other hospitals or discharge. Main problem my INR is 4-5 and I was one of the patients who trialled coagucheck machine 27 or so years ago. Doctors panic about such a high INR and to make matters worse local icb stopped funding GP testing!I am very poorly now and don't think I will be around for new treatments such as testing treatments for all autoimmune. Research biotech company Oxford and west coast US. Also now thanks to long COVID they are identifying proteins responsible. Thirty years and all been a challenge. But huge thanks yo Hannah

[GillyA in reply to Still-smiling]

Yes, I’m worried too. The local anticoag service is very weak, I can’t self test or stabilise on warfarin. Prof Cohen and the anti coag team have made such a difference.