does no body care ?: hi everyone. I am having a... - Heal My PTSD

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does no body care ?

Spedyrecovry50 profile image
43 Replies

hi everyone. I am having a tough time at the moment. I cant sleep. its 3 am. I have started the process of going from esa support to universal credit. the problem i have is when I talk to officials about my benefits I get really stressed out. I have tried not worry about it but I just can't. I have angina and ptsd. 12 years ago I was being moved from incapacity benefit to esa. they wanted to do a work capability assessment. I freaked out about that. my doctor stepped in and said I could not do it because of my heart. they persisted. I ended up in hospital after having a heart attack.now I feel I am going down the same road and nobody seams to care how much stress this is causing. I keep getting chest pain. it hasn't gone down my arm yet. have also had 2 really bad panic attacks.

I have the ID phone call on Thursday morning. I am worried I will not make it. I dont know what to do. my gut tells me to cut and run. everyone else says its only a phone call which my dad said he will take I only have to do the security part of it.

I am lost.

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Spedyrecovry50 profile image
Spedyrecovry50
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43 Replies
Nathalie99 profile image
Nathalie99Partner

Hi Spedyrecovry50,

I would suggest that you put all you can and do that check on the phone and let your Dad talk to them. That way they could verify it's you.

I know you haven't slept the whole night probably so this is going to be very difficult to do without sleep but I hope you can make it.

A lot of people really care and I'm very sorry that they put people through this. Sometimes they don't understand how bad some conditions can get.

I know it's really tough and that is what you need to tell them...

I am thinking of you...

Spedyrecovry50 profile image
Spedyrecovry50 in reply toNathalie99

thanks Nathalie99. it means alot. I know I have to just try and do it. I have my therapy today. that should help.

Nathalie99 profile image
Nathalie99Partner in reply toSpedyrecovry50

I am really sorry, Spedyrecovry50, that it caused you such terrible stress.

I hope you can focus on your recovery and rest...sending healing wishes...

Turnipgirl profile image
Turnipgirl in reply toNathalie99

Back in May when I put in a claim for unemployment benefit they made me attend 2 appointments on separate days rather than getting everything sorted in the one appointment and I was extremely annoyed!

Nathalie99 profile image
Nathalie99Partner in reply toTurnipgirl

I hear you, Turnipgirl. It's more than stressful and I'm sorry people go through this. It's already tough being unemployed or disabled.

Turnipgirl profile image
Turnipgirl in reply toNathalie99

I hated having to see them every week as I did for the first 3 months of the claim but fortnightly isn't too bad!

I was put out when I got booked in for a 1.45pm appointment last week as it meant I couldn't go for a swim!

Thankfully Mondays appointment is at 3pm and I can go for my swim beforehand as at least with 3pm it's out of the way not slap bang in the middle of the day like 1.45pm was!

Phoenix1992 profile image
Phoenix1992

Hi Spedyrecovry50,

My niece who I had referred to last time, was extremely stressed by this too. In the end it was more of a formality. As she went from DLA as a child to ESA Support and is mostly housebound and then to Universal Credit.

I wonder if this is all to reduce the amount of fraud in the system and to check nothing has changed for you ie: you have got better. They really don't differentiate between conditions that can improve and conditions that never improve or become worse.

You have your dad's support, do your ID and pass over to your dad and he can reiterate what happened before due to your stress levels. They must have a huge amount of evidence already for you.

They want you to cut and run as they want to save money. Stick with it and know it is the system that doesn't care for you, not the majority of people who work in that system. (I try and not think of the people who created that system.)

I found it's this waiting time that affected my anxieties the most. Take care.

Spedyrecovry50 profile image
Spedyrecovry50 in reply toPhoenix1992

thanks Phoenix1992. I just need to chill out which I am finding hard.

Phoenix1992 profile image
Phoenix1992 in reply toSpedyrecovry50

Way easier said than done! I agree with your message below, reach out to your doctor. Look forward to your update and you are very welcome.

Dolphin14 profile image
Dolphin14Moderator

This is a stressful thing to go through. We have similar systems in the USA.

I do believe they want people to walk away as Phoenix1992 has mentioned.

Let your dad help you, always take whatever help you can.

You are not alone. We are here to support you

❤️🐬

Turnipgirl profile image
Turnipgirl in reply toDolphin14

Thing is in regard to those benefits they are yours by right after having paid in to the system for many years and not charity and handouts!

Dolphin14 profile image
Dolphin14Moderator in reply toTurnipgirl

I agree 100%

❤️🐬

Turnipgirl profile image
Turnipgirl in reply toDolphin14

The staff in the benefit office are nice and they just do as they are told!

It's a swim this morning then an interview at 2pm and an interview tomorrow morning at 10am and one Saturday morning at 11.50am in the city centre and I will nip down for the morning, do my interview and then come straight back for the Christmas fayre at the village hall at 1.30pm.

I had a think about things and I feel that no its not me that's awkward and unreasonable over things!

Dolphin14 profile image
Dolphin14Moderator in reply toTurnipgirl

I'm glad they are nice in the office. Ours have a reputation of being a bit cranky.

Another busy day for you. Best of luck with the interviews. Enjoy the Christmas fair! I love those. I haven't been to one this season

❤️❤️

Turnipgirl profile image
Turnipgirl in reply toDolphin14

Yesterday I was at swimming and someone there asked me why did I apply to Newport for an interview that I went to last Friday and my reply was that I apply where jobs are available and see where it takes me!The woman concerned asked me had I retired one Monday morning all because I took the 10am slot!

She doesn't have a job and made up with all kinds of excuses why not applying for things can't happen which is ridiculous!

My sister in law said how it was none of her business where I apply for jobs and it's better than sitting around all day every day sorry for myself!

When they rang me on Monday morning to ask me would I like to interview this Saturday morning I didn't mind that and I decided to do it and then nip up to the Christmas fayre later on and get some fruit and veg at the market in town whilst I'm there which I think is a fair deal!

Great news as a place from Newport near the docks has just rung inviting me in for an interview for next Wednesday at 11.30am!

I'm glad that I am who I am and don't go hiding behind childish excuses not to do things!

I find it infuriating with people like that when there's always some kind of stupid excuse why things can't happen!

Phoenix1992 profile image
Phoenix1992 in reply toTurnipgirl

Such a good point Turnipgirl! I worked from 18 - 60 & still had to 'prove' my mental health issues!

Turnipgirl profile image
Turnipgirl in reply toPhoenix1992

They claim to me that there's loads of help out there for those with health problems and I reckoned it was lies and it appears I was proved right as when things are too good to be true then they are!When I get told these things I don't listen to them and just say OK then and I watch how they behave as actions show intentions rather than going on what you're being told!

The beauty about being nearly 50 is that i have had many years of experience and have a good idea of when I'm getting fobbed off with silly excuses!

Spedyrecovry50 profile image
Spedyrecovry50

thanks everyone. it means alot. I might chat to my doctor as I am worried about my heart and blood pressure. I will keep you all updated.

Spedyrecovry50 profile image
Spedyrecovry50

update.I went to the hospital today. I had chest pain last night after a very stressful day. they did tests and has said I had a spasm in the micro arteries/vessels. they said it was due to the stress. I have been advised not to do the phone call. I have be give some slow release gtn that I have to take every day. I will need to talk to my gp about it.

Phoenix1992 profile image
Phoenix1992 in reply toSpedyrecovry50

I'm so glad you got checked out when you did. Take care of yourself.

Spedyrecovry50 profile image
Spedyrecovry50

I have told my work coach about the a&e visit. he says he can let my dad do it unless he is my appointee. he also said they would do a home visit. that for me would be worse than a phone call. I cant believe they don't understand how serious this could be.

Turnipgirl profile image
Turnipgirl in reply toSpedyrecovry50

They're not exactly sympathetic are they to the seriously ill at those places!

Phoenix1992 profile image
Phoenix1992 in reply toSpedyrecovry50

Can you make your dad or another family member your appointee for this? I noticed they don't use Power of Attorney, so maybe just for the DWP. It may only need a form filled in.

Spedyrecovry50 profile image
Spedyrecovry50

another thing. I had another episode of chest pain this morning. the gtn sorted it out but it was longer this time. I think I need to win the lottery. :(

Phoenix1992 profile image
Phoenix1992 in reply toSpedyrecovry50

Just to add from my previous post, you have to have an interview to appoint a relative as an appointee. Can your work coach do that? As you already know that person. There is a form to fill in with them.

Although, isn't your appt tomorrow? Maybe it's worth getting it out the way and only speaking to identify yourself. Then focus on relaxing.

1949liz profile image
1949liz

I agree I think you should let your dad talk, then you can sit and listen if you put it on speakerphone. It’s no good anyone say to you don’t worry, that doesn’t help. Try to keep calm just let your dad take over. You’re so blessed having a dad who will help, I lost my dad many years ago take care, God bless you love Liz🙏🤗

Spedyrecovry50 profile image
Spedyrecovry50

thanks everyone. to have my dad as a appointee I have to be assessed then he does. I am keeping with the phone call. hopefully it will be OK.

Spedyrecovry50 profile image
Spedyrecovry50

OK. I contacted my local mp. he raise it with the dwp but he hasn't got back to me. the phone call is still going ahead. I took my gtn slow release today. I have had a bad headache all day. but my heart feel OK so far. hopefully I will not have any mishaps in the night. I will let you all know tomorrow.

Spedyrecovry50 profile image
Spedyrecovry50

updateI had a lot of stress and even a few panic attacks leading up to this phone call. I had my dad and sister with me this morning ready at 8.50am

9 came and went. at 945am I had sent 3 messages on the journey to ask what was going on. Still nothing. in the end my dad phoned the UC phone number. they have sent a message to the local work coach department. no we have to wait.

I am pumping gtn like its go out of fashion.

I don't know how long I cant carry on.

Dolphin14 profile image
Dolphin14Moderator in reply toSpedyrecovry50

This is horrible. I hope they get back to you soon.

Do you have anxiety medication?

Spedyrecovry50 profile image
Spedyrecovry50 in reply toDolphin14

I have gtn which stops the heart part of it but they don't want me on anxiety meds.

Dolphin14 profile image
Dolphin14Moderator in reply toSpedyrecovry50

I was just curious about the nitro use. I understand the workings of it but was just curious about the reason for no other meds. I'm always asking questions to learn things. Don't mind me.

Do whatever it takes to get through this stressful time

Thinking of you

Spedyrecovry50 profile image
Spedyrecovry50 in reply toDolphin14

I had depression in my 20s. they put me on meds. I then started self harming so they took me of them. thats why they don't want to put me on them again.

Dolphin14 profile image
Dolphin14Moderator in reply toSpedyrecovry50

Thank you for answering. I know that was a personal question and I appreciate you sharing.

We have lots to teach each other.

Be kind to yourself as you wait for these people to call you back.

Turnipgirl profile image
Turnipgirl

One thing that really aggravates me no end is when those who are paid to help you don't and just make matters worse!

Spedyrecovry50 profile image
Spedyrecovry50

update. well. my work coach didn't contact me until after 11am. he said my phone kept going to voicemail so he marked me down as a failed to show. I tried to contact him on the journal 3 times with no reply. I am not sure how much I can handle.

gettingsomewhere profile image
gettingsomewhere in reply toSpedyrecovry50

Hi this is incredibly stressful for you. A dreadful situation. Thinking of you as you wait.

Spedyrecovry50 profile image
Spedyrecovry50

thanks everyone. where its left is I have another call on Monday. I have emailed my mp again and I am waiting to talk to my gp. I will keep you all updated.

secrets22 profile image
secrets22

Lack of sleep is something i know so well, its debilitating and distorts our view of life, but i have found nothing is as bad as first thought , and you can get through this. I wish you well.

Lindyloo53 profile image
Lindyloo53Volunteer

hi spedyrecovry50

What a horrible place to be in. Breathing and concentrating on my breath is important to me in these most stressful moments.

It’s good that after the security checks your father will take over the call. I’d allow my father to do that.

for me it’s also important, most important, to use basic self care in times of stress. By this I mean things like regular healthy meals and if I can’t get a meal in then regular healthy snacks. Showering is also important to me. I need to keep warm or cool depending on the season. You will know what works for you.

Focusing on an end result is also important. I don’t understand esa and universal credits but I’m assuming is a form of income support and that universal support is the better one to be on? So if that’s the case concentrating on that and getting together your data required for your father to convey would be something you can do without speaking to them and would facilitate te process for your father.

It’s pretty tough going through assessments, I’ve just been through two, and focusing on the end result, having all my ducks in a row, has bought about a positive resolution.

Think of you as you find your way through yours.

Spedyrecovry50 profile image
Spedyrecovry50 in reply toLindyloo53

thank you.

Spedyrecovry50 profile image
Spedyrecovry50

hi everyone. just got off the phone with Universal credit. it went well. he was really nice. it was 3 questions about me. I spoke to him instead of my dad. it was very hard. but its now done. he said it takes a few days for esa to transfer the data but once its done I should be put in the support group. which will be good. thanks for all the support.

Phoenix1992 profile image
Phoenix1992

I was just looking for your post for updates Spedyrecovry50. Oh my goodness, not an easy time for you last week!

I'm glad you have had contact with someone from Universal Credit. Fingers crossed it now runs smoothly for you. I hope you have been able to start to relax after your phone call today.

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