Results today...: Well today finally done! Good news... - Headway

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Results today...

peaches2 profile image
21 Replies

Well today finally done! Good news as in the tumour hasn't grown since the radiotherapy but it hasn't shrunk either. It can take a long time to see results so it's still positive news as far as they can tell me. They are happy in that there is not too much swelling etc etc. They will see me back in a year but it could be June/July if my surgeon wants to see me. They said to go and celebrate and get my hair done...woo hoo, I can't wait to get my colour done and feel more like myself again! My husband is as high as a kite and I am too but I admit I'm overwhelmed with tiredness tonight...it's catching up with me, so I'm going away to have a lovely bubbly bath and we will order a take away! Thank goodness today is over! Thank you again for all your help and support and I'll be sure to read your updates and will always be wishing you all well. Lots of love. xx :) :) :)

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peaches2
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21 Replies
RogerCMerriman profile image
RogerCMerriman

Great, and breathe! Oh and enjoy that bath and takeaway though perhaps not at the same time.....

StrawberryCream profile image
StrawberryCream

Great news! Am very pleased for you.

razyheath43 profile image
razyheath43 in reply toStrawberryCream

FANTASTIC! and i say yes eat the takeaway in the bath! lol we are all still here if you need us

suemoff profile image
suemoff

That's brilliant news. No wonder you are shattered. Have a lovely relaxing evening.

Blessings

Sue x

suemoff profile image
suemoff

Brilliant! Well done you.

Sue

aqua4 profile image
aqua4

Hi Peaches, lovely news. Kx

randomphantoms profile image
randomphantoms

That's just about the best you could hope for.

It must feel fantastic knowing that you can begin to plan again and look forward to things.

Enjoy the bubble bath and take it easy for a couple of days to let things settle.

Love n hugs

Xoxo

cat3 profile image
cat3

Oh Peaches, thank you so much for letting us know. You must be so relieved (like many of us here ) but it will have had an exhausting effect. So hopefully you've had that lovely bath to calm the excitement and are feeling cosy & happy.

I remember when I was allowed home for the weekend from hospital to see how I would cope. I dyed my hair then, in preparation for my return, painted my nails and piled on the mascara. It felt like the beginning of better days ; a great feeling !

I'm so very happy for you my dear. :-/ Love Cat xx

angelite profile image
angelite

So pleased for you, Peaches - let the celebrations commence !

A lovely bath and a pizza - sounds like my perfect evening ! : )

Angela x

Alice5 profile image
Alice5

Such good news! Hope you enjoyed your bath and takeaway xx

BaronC profile image
BaronC

Fantastic news! Very, very happy to read you update. Long may it continue.

Sending my very best wishes to you and your's!

Andy

Judithba profile image
Judithba

Wonderful news. xx

Matt2584 profile image
Matt2584

Hi Peaches and congratulations on the good news :),

At least you have had much better luck than I had with radiotherapy.

I don't mean to put a damper in this comment, I am just telling you a bit about what I went through.

I was diagnosed with a brain tumour in 96 and had surgery on that. In 1998 I was diagnosed with a cyst that is equivalent of a tumour and was also right next door to my 1st tumour.

I had radiotherapy too on the cyst/2nd tumour and scans were later showing that the tumour was pulsing, getting larger and smaller.

You say your tumour seems dormant and I am sure in time it will continue to decrease until gone completely :).

I am guessing the process was similar to mine, you had a transparent mask made to protect you from the ray and had to lie on a bed/table while being zapped right?

I had to lie on my tummy as my tumour was located on the brain stem.

During the later stages of the radiotherapy, I did feel quite nauseous and my appetite went to pot for a bit so having to go for a session of radiotherapy, spending 30-45 mins on my stomach was not good.

I feared I was going to chuck up inside the mask.

Thankfully I didn't though :).

After the radiotherapy had finished, I was told by docs that I could keep the transparent mask and like many others I could make it a work of art by painting on it. I didn't do this though, did you?

Take care,

MJ

peaches2 profile image
peaches2 in reply toMatt2584

Yes Matt I also had the mask made in August ready for treatment in September...it didn't phase me as I was so determined and kept thinking that if this was all I had to do to get better then so be it...I tried hard to tune my mind into thinking that anything uncomfortable about it was a good a thing and meant the treatment was working. I seem to be quite good at training my brain into thinking that the awful things you need to go through are infact great things as they are pounding that thing out of my head...I even lie in the mri machine and every noise it makes I think, yes, bang that thing out, zap it, do your job and I imagine every single noise is a doctors tool chipping away at the tumour! I never have music on to calm me, I prefer to hear the machine banging and clattering around me so I know it is working! (probably the weirdest description of how to cope with getting through it but it certainly makes me feel better)!! I'm not saying it's plain sailing as it sure isn't and yes there were times where it was so claustrophobic but at those points I kept saying...in through the nose and out through the mouth, you can do it...a few even shallow breaths now for a lot of lovely deep breaths until your old, once this treatment works you'll be glad you did! I was glad when it was over but I would say the waiting to have it done was far scarier than the actual having it done. They sent me home with the mask but I never decorated it or anything. I do remember thinking wow this probably holds more meaning walking out of here with this mask than any actor carrying their oscar home! x

steve55 profile image
steve55 in reply topeaches2

well come on peaches how was the weekend?

peaches2 profile image
peaches2 in reply tosteve55

Hahaha, it was great thanks! I booked an appointment for my highlights and to get a much needed cut, I treated myself to a lovely new jacket and afterwards we went out for a meal then visited a few bars for drinks! (haven't done that in a long time). I was on a bit of a high but lasted well and was up as fresh as a daisy in the morning! :) Hope you're fine. xx

steve55 profile image
steve55 in reply topeaches2

yes thankyou. pleased you had a good time.

ive just read my post to you ........good job you were in a good mood , otherwise id be the one getting the slap!!!

steve x

steve55 profile image
steve55

great news peaches.....almost the weekend get your hair done whack on the slap and paint the town red.....really pleased

SAMBS profile image
SAMBS

That's great Peaches. sorry I'm late seeing your good news (:

Hope you enjoyed the bath and take away though :-) :-)

Shirley xxxx

peaches2 profile image
peaches2

Thank you so much for your lovely comments everyone. I am continuing to train my brain into thinking the tumour is fine, it's there but fine, it's under control...so long may those thoughts continue. I know it will be hard because when I am on a, " not feeling so good day, with actual physical symptoms" it obv reminds me that i still have a brain tumour but i will ride those feelings as best as I can and be grateful for the good days! I truly hope you are all coping well and if not that you find the strength from us all here to get through things. Lots of love as usual. xx

MXman profile image
MXman

Fantastic news peaches, well done. N

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