I've been on this site a few years and because of my brain injury and reasons related to it I have used different names, some of you will know me as Hannah S, LeslieDilks or currently CindyBurton10
Anyway!!!! After 8 long years I have finally been given the all clear that my AVM has gone. In the consultants words...."Its been obliliterated"
I felt like there should have been a marching band, streamers and balloons dropping from the ceiling. There wasn't of course, but the news was just what me and my beloved hubby needed. The problems caused by the AVM haven't gone but the AVM has....yippee!!!!!!
Then we got these responses from some friends and family.... Will they stop your money, will they take your disabled badge, Can you work now, Can you go out alone, Will you stop being jumpy and afraid of noise, Will the light still affect you. Will you still need your walking stick. Are you going to book a cruise or fly to some exotic island to celebrate etc...etc....
I know it's difficult to understand brain injury and I'm probably being harsh, but I felt shattered and very disappointed when friends/family said the above.....for goodness sake people I've been given the all clear that the AVM has gone. I've still got all my problems, there hasn't been a miracle and everything obliterated.... if only!
I now know the ticking time bomb in my head in Elvis words...."has left the building" The news has been great, but life won't change, we will just continue living life with a brain injury using the strategies learnt from the professionals and stratergies learnt by trial and error of our own making. We will now of course be AVM free. Yippee!!!!
Just wanted to share and also wish you all well !
Take care 😃