Should I be happy or scared?

After having a really bad day yesterday on top of what has seemed to the longest flare up in history and yesterday took all my MST 30 mg twice aday and Oramorph four times and still to be in pain. The only thing was I was also very tried last night and usually for me I went to sleep and got a good nights sleep for me anyway.

As I woke up I was a little stiff but not in any real pain. I have been able to get on and get loads done. I have cleaned the kitchen and bathroom. Got up to date with washing and was able to walk around with hips only hurting a bit. I haven't been this good for such a long time with the pain not really being there.

Does this mean the pain has gone for ever and I can get my life back and be able to do everything I want to do. And go back to work a job I love.

Or is it just a cruel day ,just showing me how good I did have it and as quick as the symptoms went they can come back again

I am trying to enjoy the break ( have made cake, home made bread and doughnuts)

But I fear the pain coming back. I then I would again have to get used to a limited life again.

Does this happen to anyone else?

6 Replies

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  • On a down note yes we can have great days followed by bad days.. Usually because we do so much on a good day all thoughts of pacing go out of our heads..

    On a positive note I had what I would call a remission for seven years soon after I was diagnosed 23 years ago.. So it is possible to have plenty of pain free days ... Weeks ... Months.... Even years ... So please don't be upset if this great time doesn't last ...hopefully it will..... Fingers crossed ...but if it doesn't , next time you have a really good day... Try and pace yourself and not do too much... And the good days may last longer....Easier said than done .... But I have had many years to practice and I still forget on a good day

    VG x

    Ps take any good day and be happy... dont worry that tomorrow might be bad :)

  • Gone forever,, that would be wonderful ,, I'm always having symptoms fortunately there are not too bad. I just have the all over bruised feeling in bed, pain in legs and feet . That's the usual . I am great full that's all it is at the moment . I do have other things on and off . I'm always expecting something . I hope you feel ok for much much longer if its calm at the moment . X

  • Don't be fooled and pace yourself or you will suffer for it..... SORRY :(

  • Amen.. No truer words!!

  • Very true, I should of paced myself as yes I did crash the next day. Still haven't really learnt my lesson . On the odd occasion that I have a good day now I still over do it as it is so nice to be able to get things done. I just wish that this horrible condition would just go away as quickly as it came. I am lying here tonight trying to sleep but every bit of me hurts even after Oramorph and feeling very very sick due to new meds for RLS and PLMD. The only "good" thing is in this pass four days have lost 3 kg. so every cloud does indeed have a sliver lining !

    Hope everyone is feeling better than me

    Caroline

  • Very true, I should of paced myself as yes I did crash the next day. Still haven't really learnt my lesson . On the odd occasion that I have a good day now I still over do it as it is so nice to be able to get things done. I just wish that this horrible condition would just go away as quickly as it came. I am lying here tonight trying to sleep but every bit of me hurts even after Oramorph and feeling very very sick due to new meds for RLS and PLMD. The only "good" thing is in this pass four days have lost 3 kg. so every cloud does indeed have a sliver lining !

    Hope everyone is feeling better than me

    Caroline

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