Fibromyalgia Action UK
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Good Day - Bad Day

Morning Everyone,

Yesterday as I said, I was granted my PIP award again for the next 3 years and I didn’t have to up for a face to face assessment!! I was so releaved, To “celebrate’ I was having my haircut I decided to treat myself to a colour, nice ehh.

While at the backwash, within a minute I was in a lot of pain. They were lovely and allowed me to lift my head up whenever it got too much ..... I was happy with the result, however as the day went on the level went up an up.

Today I am in absolute hell I can bearly move my head, took over ten minutes to lift myself up from my bed I then had to gradually stand up and go to kitchen for a brew. I tried to lift the kettle ( which was full already) but the pain throughout my neck, back shoulders arm, hand and so on and on it goes ......

Some days I feel like I shouldn’t be allowed a good day and I’m being punished for doing so.

I couldn’t sleep so it’s making it worse I am soooo ANGRY with this illness . “Dare to have a good day , I’ll put you back in your place, so think on” ... that’s what my internal dialogue tells me....

Rant over

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Oh lynn, I am sorry to hear about this, such a debilitating thing to have to deal with, and like you, I get b*****y edited by admin angry a lot of the time, and by the sounds of it, you’re more advanced than me. Go get a film, a drink, sit down, breathe and be kind to yourself... hope it eases off a bit x x

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I wiil

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You may be in agony BUT I bet your hair looks grrrreat! 😘 It sounds like your neck muscles are in spasm so try hot and cold packs to relax it then lay down with a rolled towel behind your neck and gently stretch out the muscles - I’ve suffered excruciating neck spasms for years and this is the best treatment I’ve found!

Hope this helps you Lynn xx

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Thanks yes it feels like my neck and back are in spasms I’ll give it a go 😀

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I agree with Beachcomber53 I too get neck muscle soreness which can sometimes cause a migraine,, tuck your chin onto you chest , put you thumb on your chin and gently push back, slowly move head from side to side,, you should feel gentle stretching happen..

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Sorry your day started off good and went down hill from there. I am sure we all understand how your feeling at the moment. Hopefully when your flare settles down you maybe able to enjoy your award and you lovely new hair colour :) xx

Momo

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soft gentle hugs

hope it soon passes

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(((Soft hugs)))

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Hurrah for the good stuff! If it wasn't having your hair done it could have been cleaning your teeth or putting the kettle on or nothing that caused your day to go down hill. Fibro is a bit rubbish like that.

Might have your hair washed forward though next time, just to be safe?

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I am really pleased that you got your pip and you can definitely relax now. I know exactly how you feel with the bowl at the hairdresser. I suffer exactly the same. In the past I have come out feeling sore. So now I don’t have my head down for to long only when they have the water on and I always tell them to be quick. I must admit I don’t have a lot of patience when it comes to going to the hairdresser. I like it when I have my colour done but the girl takes to long to do it but I have to have it done or I would look like a grey badger lol 😂. Take good care of yourself sweetie and I hope that you will feel better soon. Love and hugs 🤗🤗🌹🌹😘😘🤞🤞🤞

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Thanks Jan, it had been 3 years since I was last at the hairdressers and was the first time I’ve had a colour! Thanks for your comments. Feel even worse today I had a really long soak in a Epsom salt bath it was nice at the time but afterwards the pain came back, it’s a shame I can’t live in a hot 🛀 lol 😂 😂

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Hi sweetie so sorry to hear that you are still suffering. Honestly it’s a absolute nightmare this pain. I to have been suffering but it’s with my back pain.

Epsom salt really help a lot of people but unfortunately I don’t get much relief from them I can lye in a bath and just have the same amount of relief.

It’s so sad that this was the first time for you having a colour and having to put up with so much pain sweetie. I really feel for you. Take things easy and please take good care of yourself. Love and hugs 🤗🤗🌹🌹😘😘

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Good on you hun its like getting a small payout on the lottery when it arrives!!

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Hi Lynn, I have had this problem for years. I only ever get my hair cut and they always use a spray bottle to dampen my hair instead of washing. Works fine . All the best

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