I have turned into the incredible sleeping woman. There's pacing (which I am still trying to get my head around) then there's just stopping. I have two kids and a stressful part time job, I don't have time for this.
It's not like I haven't slept. Week before last I started with a flare, then I had a virus on top. But my boss let me work from home, my husband let me sleep in very late all weekend and I did NOTHING except iron the girls' uniforms this weekend. Yesterday I did my pilates DVD but then rested the rest of the day. Today I took the kids to school, came home, made some porridge then slept from 9.30am until 2.30pm! And I only got up then because it was nearly time for school pick up. There's been no over exertion and yet I can sleep for England! The only reason I am up now is that I am waiting for the meds to kick in. Sometimes it's a toss up as to what is worse - the pain or the fatigue. At least with pain I can take meds and do odd things, the fatigue is so overwhelming I can't move. I can't think that the rest of my life will be like this. I am down, but definitely not out. Like a weeble, I wobble but I don't/wont fall down. Just someone pleeeeeeeease tell me tomorrow will be better!!