Just needed to have a bit of a moan to all that understand. I'm totally sleep depraved, am having a really bad spout of pain, started last Tuesday after a week of reprieve, actually thought that it may be gone, but it came back with a vengeance and more painful. Started having spasms in my sides, which is quite worrying.
Got a car a few weeks ago which has been a lifeline for both me and my daughter, who has chronic back pain. Only thing is that it is playing havoc with my hands, but it's a matter of the best of two evils!!
Keep trying to do everything as normal as it's just me and my kids and i'm so used to being fiercely independent.
I'm so tired, frustrated and sick of being unable to do the simplest of things at times. I'm also sick to my back teeth of incompetent, rude and dismissive doctors. I'm currently on ESA support group for another reason which does not state an end period!! so am waiting for the letter to drop that it's finished and then another battle will ensue.
I'm also so frustrated that at times I can't be there as much as I would like to help my daughter when she is in a lot of pain. I empathise with so many on this forum and often think that my problems are nothing compared to some others, but I suppose it's al relative and i'm just at a low point at the moment with no positive conclusion in sight. Sorry for the long ramble but thankyou to anyone who reads this and knows how I feel.
Moan over!! Karen xx
Ooh, by the way, am on pregabalin, tramadol and paracetamol. Plus omeprazole!!