What next to give me pain...... - Fibromyalgia Acti...

Fibromyalgia Action UK

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What next to give me pain......

rainbowdancer profile image
6 Replies

Hi everybody hope you are all snug in bed on this frosty night!!

I am here moaning again sorry,but I have no other outlet grrrrrr :-(

Today I had to be up at 7 to get ready for hospital appointment to see a bowel surgion,after being in agony and bleeding like a pig for eight weeks or more....arrived in -3 conditions and no parking spaces . So my OH built my scooter and I went off to the dept; booked in and parked my little chariot only to be called straight away. The nurse said " Oh can you walk at all as there is not enough room for your scooter." " No I need to use this " so we get to the room and she says I need to park in the corridor,and walk to the room and sit on a chair. No help offered so I told her my husband would be here in a min;as I cannot dress or undress myself as I cant stand and bend. She then said she would help me if I needed it,and walked off into said room. She then realized I was not with her and came back out,and enquired if I needed help to get off the scooter too. I told her I need your support to get up and to walk please.

We got into the room and the surgion spoke to me then told her I needed to get on the couch,and lay on my back ,My Main problem is I cannot lift my legs as they are very heavy and my muscles don't work. So she helped me on to the bed....At this point I was concerned that my OH was not with me but the nurse said " Oh you will be OK I will help You ". I also cannot turn over on my side as I go dizzy and need help.....................I will not go into details but lets just say I thought I was in agony before but since the examination and the hauling about the pain before seems mild.

I called my daughter to let her know I was home,she just said she did not have time to talk as she was on her mobile and would call me later. I felt like I was bruised from the waist down to my thighs,even laying in bed did not help,and even a wee was painful. My daughter eventually called and said well mum at least you are now in the pipeline so to speak. (I have to go back for more tests and a biopsy. in feb: )

The Day got worse my Mother is in a home that we pay nearly 4 grand a month and now the money has run out and the home says the council only pay a small amount,so Mum has to move to a smaller room ,could I sort her things to move and by the way there

is a shortfall of 2 grand !! WHAT !!!

Called my daughter back after being on the phone to home council etc...and she said go on FB and ask my friend who has a van to help you...and don't worry it is Nan's debt not yours end of!! .........I thought Thanks a lot,as at the time I couldnt sit walk laydown or do anything...........................Just managed now to find the guy ,and explain who I am etc....

I just do not know what I could have done to have so much happen to me at the same time ,if I had to write down goods and bad ..the bad would def outway the good by a long

chore...tonight I feel very sad and lonly and I am sorry if I have garbled on and on but I am not sure how much more I can take!! My memory is so bad that at times I think I am going MAD because, My OH and my daughter tell me things and I just don't remember the situation at all !! and when I tell her things she says alright you have already told me that!!

Sorry again Virtual (((((((((((((((((Gentle Hugs )))))))))))))))))))) to you all I feel I could do with a hug,but they too are few and far between...well real ones !!

I am hoping to be more settled tomorrow.

Love and Light Rainbow x x

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rainbowdancer
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6 Replies
fairytails profile image
fairytails

im so sorry to hear the day uve had bless your heart people can be heartless when u most need comfort sometimes i do hope that you get things sorted out and your pain gets better at least back to tolerable again lots of hugs alex xx

lullabell36 profile image
lullabell36

I'm sending you a big soft and gentle hug, wish I could do it in person as I know how much it could help, I really hope things get better very soon, and you get a break from your pain.

Sthandra profile image
Sthandra

Oh Rainbow you poor thing you have as my late mum would say been through the wringer, I do hope your feeling a bit better soon, big gentle hugs . Sithy

Matrix profile image
Matrix

Rainbow like you I live in a life of chronic never ending pain and illness (since I was 12 over 49 years) in the main family don't understand I have one child who is just lovely but can't cope with me being ill she rings everyday asks me how I am and as long as I say I'm ok her world turns so that's what I do .Another perfectly nice child who seems to let nothing bother her ,and a son who works in IT and came to me recently and apologised he had to sort out the working requirements for a fibro sufferer and said I never knew how much you had to put up with.

There is little help for people like us and I take great comfort in my faith ,just because I am a Christian it does not mean I can't suffer.Rainbow if its ok with you may I pray for you .I will watch this thread for your answer .Have you thought you may have depression as well ,often chronic pain sufferers do and antidepressants do work I have taken them and the world looked better I have to say.Keep your chin up and we are here if you need us xxxx

rainbowdancer profile image
rainbowdancer in reply toMatrix

Thanks Matrix your coments came in as I was typing a reply. I have had my family funny with me all my life,because if anything happened it happened to me.

My daughter cannot cope with me being ill,so she always points out people who are worse than me! !6 years ago I had throat cancer and could not speak as it was in my voice box,and because of her attitude I went through it alone.When I got the all clear she went mad because I didn't tell her,what I had been going through....its a no win situation.

I am depressed but I know why because I get so frustrated about how long it takes to get any help! I am seeing the Dr on 30th jan to talk to him.

hugs to you and thankyou x

Rainbow x x

rainbowdancer profile image
rainbowdancer

Thankyou all so much for your kind wishes. The pain eventually went off about 7 this morning.I felt like I had been run over by a steam roller . thing is once you lay down and relax thats when the pain gets worse for me. :-(

I stayed in bed till half two then got up feel a bit better today. ;-)

Big hugs back to all of you <3

Rainbow x x

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