Could I have FM?

Hello everyone

I wondered if I could get some help and advice. I have recently looked up the causes of many symptoms I have been having for years, but has got worse with age. I have not been diagnosed but FM came up when I was researching my symtoms. I am 23 years old and femaIe, I have had muscle aches and pains all over for years and as I got older I have noticed especially my back, neck, shoulders and legs hurt. I get cramps in my hands and feet easy. Every so often I get all over muscle spasums and these opccor mostly at night in bed and always before I am asleep.

I have bad hair thinning and hair loss. I have always had tiredness even with enough sleep. I often get events of extreme tiredness and/or headaches. My joints can ache and click a lot. One of my knees is the worst as it constantly clicks and I have had a operation to remove excessive scar tissue. The scar tissue was not there from any sort of injury and was said to be an unsual amount. The only thing that can relife me of pain on most ocassions is a hot bath or show, very hot! I have been diagnosed with IBS by my GP. I have aniexty very often and can feel low. I also have problems regulating my body tempreature especially at night I am like a radiator, even on cold snowy days like these with no heating on. The aches and pains do get better if I do the extra exercise such as the gym. If I stop the symptoms worsen the change of wheather can also effect this. My legs, arms, lower back and neck in particular get very stiff and sore, I can not sit in one position for very long and I have to constantly move. I get a pins and needles sensason very quickly in any part of my body. Every so often I get sharp sudden pains.

I am thinking to talk to my GP of my symptoms and mention I found out info on FM. The problem is I just moved to Germany and I am awating my Health insurance card. To me my symptoms match to those of FM but could it all be in my head?

Thanks for any help and comments!

9 Replies

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  • If i was you i would ask for a referral to a rhumotologist good luck x

  • i agree with crissy,you have something going on there and your gp should be at least be doing some tests if he wont then maybe you should look into changing to another gp good luck hope all goes well x

  • Hello there Calley, thank you for your message.

    I would personally suggest that you speak to your GP with a view to perhaps getting a referral to see a Rheumatologist who would be able to examine you, perform various tests, blood tests etc., and hopefully give you a diagnosis and appropriate treatment.

    It would be wrong for us to surmise one way or the other. However, I fully sympathise with how frustrating not knowing whether or not you have Fibromyalgia can be, I am sure many of us including myself went through this until we finally had our diagnosis and started to receive treatment etc.

    Wishing you all the very best, please know that if you do have Fibromyalgia we are all here for you and will do our absolute best to help and support you along the way.

    If you are interested in reading more info about Fibro, please click on the link below which will take you to an article taken from our main site at FibroAction, which explains about Fibro, symptoms, treatment etc -

    fibroaction.org/Pages/About...

    Any worries or concerns, please do not hesitate to ask, we are always only too happy to try to help.

    (((hug))) xxx

    Libs

  • Try get to see a rheumatologist and a neurologist , it's the only way to be sure. I've been the same for two years till I got sooo ill I started loosing money as I couldn't go to work. Thing is we usually really worry when it effects the harmony of life instead of looking into things much much earlier . If you get a diagnosis then you can start looking into natural medicine before throwing down the pills and that to me would of helped me more , as I'm in a complete state now and really ill. It sounds like fibro to me that you have , as my knees have been hurting way back five years ago. Hope you get help , there's a questionare somewhere on line that asks questions and then gives you an answer like your 80% possible of having the ailment . I asked one for lymes and one for fibro ,, fibro came up pretty high. Hope I've been of some help to you. Good luck and don't get stressed ,, I say don't get stressed lol,, it seems to make things worse. Don't over excersize and watch what you eat ,, try eat good live foods and produce nothing in a Tin or processed . That's helped me loads , best advice I had whilst I was waiting to get diagnosed ,, x

  • Oh I forgot to say. One thing really helped I drank no tea or coffee only herbal and made sure I drink plenty of water,, obviously not too much lol . It helps And keeps your kidneys happy. I am soo sorry your going thro this. My heart goes out to everyone out there waiting for a diagnosis as its so upsetting knowing there's something wrong but what,,,

  • Don't be shy about asking to be referred BE STRONG ,, it's your body it's you that's ill. You need answers . I had to be firm x x good luck

  • Thank you all so much for the comments and advice :) they are really helpful! I will see a GP soon and hopefully get somewhere on whats going on with me. I have been telling myself for years its normal not its getting worse and I put all the symptoms together I need to know why. ooo will try my best to cut out coffee it can be a culprut for many things I have cut to one a day and the rest of the day juice water or herbal/fruit teas... yes true jjojay having all these problems and not knowing what or why is stressful they can be embarassing and just make life harder. I need to do a little more exercise and I also have a appointment this week for my knee joint problem but that of course ortho and I my need another op for the clicking and crunching and pain....but thats different from the muscle aches and pains I get all over ect. At least there is a goot network of people on here to help those even that are only suspecting to have FM. I wish you all the best. Thanks again.

    Calley xx

  • Hope you get an answer soon to what is going on. Do see a GP and keep in mind that other illnesses can mimic FM like under active thyroid if levels go very low symptoms can be very similar.

    Things with me were the other way round as in I have under active thyroid and put off going to see GP as I thought all my symptoms were down to that but my levels have been stable for years and it turned out to be FM diagnosed by my GP but he has referred me to a reaumatologist. I wish you well and hope you get some relief soon.

  • I do hope you get to see a health professional soon as it sounds like there's definately something going on. Alot of the symptoms you describe are consistent with that of FM - some others (hair loss etc) could mean your thyroid needs checking possibly. It is possible that there is more than one thing going on.

    I wish you all the best and good luck with getting an answer. Take care x

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