This illness has just ruined my life, I let my family down all the time through it and I cant seem to make them understand that its not a case of me not caring enough about them its because i just cant make the journey sometimes to get to see them and im in so much pain all the time that i have no patience to start to explain it all over again, I have a partner that will neither help me or leave me, he has read all there is to read about the illness yet choose's to ignore it so he can just tell me how lasy I am all the time and will never help with any housework or even go to the shop for me. I used to run my own business and I had a great social life etc now I have nothing or no one at all. The dhss stopped my money telling me this is not a reconised dissability so i now have to face an appeal at the end of this month which i am so not looking forward to as i dont know what i will be like on the day. And my memory is the icing on the cake but thats yet another part of this horrible illness I really wish i could just shut my eyes and die.
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