symptoms progressing

[miakenzi]

does anyone find there symptoms getting worse as in pain headaches vision any many more unwanted symptoms

[Ozzygirl64]

Yes I do. Most of us are in a fibro flare which means things have exacerbated and the pain is worse. Fibro can affect the vision too so it is something you would notice right away. The trouble with fibro is it has no end and so many 'new' things can happen. I do hope you get better soon, well as much as canbe expected xxxxx

[Sarah-Jane]

Hi Mia

Whilst I have to agree that FM symptoms can increase, there are times when they let up, at least a bit, for a while. You may develop other symptoms over time, many can be linked with FM, some are dismissed as part of FM but should still be checked out! Don't be fobbed off about that.

If you listen carefully to your body, notice when things get bad and look back for the reason, next time avoiding that situation or changing it, things can improve.

Just to give you an example or two:

If I lean forward too far for too long to help a student at their desk, the muscles around my shoulder blades ache and that can really build up. If I take note that I am doing this again, if I push my arms back to release the muscles I can get away with it - if I have acted in time.

Another: My hips always hurt, but if I walk too much, stand too much, the pain climbs fast and takes a while to calm down enough. I have osteoarthritis in the hip joint [tiny bit], which aggrivates my muscles causing bursitis, which never completely clears up and appeared out of the blue two years ago [leading to my diagnosis]. At times I have barely been able to walk around downstairs, other times I have been able to walk around two classrooms, a hall and the kitchen at school [I'm a teaching assistant] before I have needed to rest. But even then, I have to pay attention to the hints my body gives me.

They say exercise is important and I agree, however, take care or if you overdo it [so very easy in the pool] you could suffer for days afterwards. Just because you could do something yesterday, doesn't mean you can do it today.

Don't get angry, you tend to overdo things or become depressed if you do. Do talk about it, come on here. Think about getting a dog or even a guinea-pig. Something soft to stroke and cuddle.

I have a mantra that helps me 'I am a FM survivor, NOT a victim!' I wish more would feel this way.

[sue57 in reply to Sarah-Jane]

I agree Sarah.....if I do too much exercise I really, really pay for it later, but at the time I feel fine. But I'm finding it increasingly difficult to exercise at all!! I've just dusted and vacuumed (?) but I ended up having to sit down and vacuum!! It just doesn't seem fair does it? But there again, who said life was fair?? XX

[fairycazzie]

hi its complicated i guess as how did you start or what made you be persistant on Dr visits as you knew something was not quite rite.

i am kind of under control and i find i feel to my self a bit 'lazier' but i refrase this and say i am more 'careful' as to not 'provoke' anything that makes it worse as only 2+ years ago i was bouncing around and 'running' now what is running as my legs buckle and the pain in hips and legs and weakness which has progressed. what i find is that something new or old will flare up and example 3 wks ago i could not walk! i could barely get round my own house, so i did not push too much as it just put me laid up. it eased off but has not gone away and it flares if i walk even a few yards (as above the teaching assistant) it is difficult this is what i feel has progressed and i carry my fold up walking stick to take strain off.

I have another condition though which is BHMS/EDS type 3 and this affects my mobility as much as i was born with it and never knew i had it until this year it answers certain things.

I will fight for as long as possible to resist the tiny 4 wheels to help me around as i drive a lot which every time i drive it provokes things with clutch and gears and trying to get my seat belt half a mile behind me lol.

yes i believe some things have progressed and find that old symptoms that seem to ease off come back differently and are quite debilitating.

The idea is as mentioned not to provoke it and steer clear of what does and as swimming i did this and could not move for 2 days

i did the gym and persisted over and over 2yrs ago but leg dead and dragging horrible numbness feeling would not wake up for a while and would tremor every time on treadmill so i decided this was to finish because it was only making the symptoms worse! so it has helped by not going and just gently excercising at home with hand movements(when not too painful) same with feet . i hold my legs and pull them up just gently soon as it starts to hurt i stop . i can just go to sit on end of bed and i shoot back up. bending correctly down with knees bent and not over.

I seize up more and more now after small jobs. had to give up so so much bit by bit.

if you look after yourself and do things at a nice gentle pace then you be ok i sit and rest inbetween doing things (long sit and little work then again) i have a very physical job only i run it now and have to do a lot of stairs which i have to avoid on many occasions and hope all is good.

Do not over stretch.

Get gadgets to help like potatoe peeler, potatoe masher, electric tin opener.

I cannot stand long so hopefully am getting my new chair soon as social services are visiting.

it is very difficult to adapt and get your head around whats happening but i say work with it not against it (not sure everyone would agree) never let anything beat you do something that will work with it as sj said your not a victim your a 'survivor'

HI SJ lovely to see you on ! plese keep intouch missed your msgs!!! xxxx

so there is probably many more things i have missed. ohhh and with memory and cognitive thinking (fog ) i have a tiny pocket book and as much as wriiting hurts i might think of something that i should of done earlier and if it comes back i jot it down in code or whole lol

then i come home and its like having a 'new' list ohhh yes thats what i need to do.

even my pills can never remember when to have them so i give set times , get a little wkly box mon-fri

there are different types you can get. or when taken morning ones put the next ones in a tiny trinket box so when you go along in day and think did i take them you will see in your trinket box .

Missing doses can bring symptoms back i find personaly and i can be laid up .

sorry now i have written such a looong post ;-/ b;ess and ask anything you like we all here to help and try and advise.

I did pharmacy for 8 yrs so am quite ok with meds (not an expert) only opinions and advice to try help . xxxxxxxxxxxxxxxxxxxxxxxxxx xxxxxxxxxxxxxxxxxx hugs caroline

[fairycazzie]

ps i could of answered with a simple 'yes' hhaha sorrry my opinion

[LindseyMid]

Hi Mia

If you're having vision problems as well as headaches, do make sure this is thoroughly checked out by our doctor. If you haven't seen one since this was happening, a referral to a neurologist may be appropriate. It would also be suitable to get your eyes checked by an optometrist and talk to a pharmacist about whether any medications could be contributing to symptoms.

Whilst some people with Fibro find it hard to focus when tired or flaring, or struggle with contrasting light/dark or strobe or fluorescent lights, significant vision problems are not a symptom of Fibro.

[miakenzi in reply to LindseyMid]

hi lindsey thank you for answer my question i will go to doctors and make sure what has caused this