Symptoms all at once ...

[Sleepyhead_]

Set aside specific symptoms, do you get headache breathlessness, tummy pain, nausea and fatigue all at once for example ?

[Mille21]

Hi yes I do 😒

[Sleepyhead_ in reply to Mille21]

Sucks doesn't it.

[Patdoyle]

yes some days I get hit with the lot

[Sleepyhead_ in reply to Patdoyle]

Sucks doesn't it.

[Bertiemum]

Yes - on some days I get all of these. Sometimes all day and at other times for a couple of hours or so.

[Sleepyhead_ in reply to Bertiemum]

Its generally every day but worse when I'm ill or during a flare up.

[oldwomaninpain]

definitely! happening right now, add to it reflux, chest pains

going for a sit down and a cuppa for an hour and hope it wears off soon

[Sleepyhead_ in reply to oldwomaninpain]

Yes the reflux for sure chest pains IBS its almost never ending but I do like sounding out on here - puts my mind a little at rest.

[Colourpink66]

hi sleepyhead, I’ve noticed lately my symptoms are so much worse, I think it’s due to this stormy unsettled weather we’ve been having, also these viruses that are about, I can’t remember the last time I had a day several of the symptoms you mentioned

[bookish in reply to Colourpink66]

Same here - struggling with a virus but the weather changes trigger my mast cells so have all of the above and a few more.

[Sleepyhead_ in reply to bookish]

Weather changes have always affected me.

[fibo in reply to bookish]

Hi what are you talking about mast cells. I've not heard of that before a friend has mastocitus and he is convinced his dying. Are mast cells part of Fibromyalgia ??

[bookish in reply to fibo]

That is a big question and not one I am sure that I can answer adequately. Mastocytosis is the recognised, rare and often severe form of mast cell disorder - believed genetic, where too many mast cells are produced. My sympathies to your friend. Lawrence Afrin is the main name mast cell-wise and I'm just reading his huge book Never Bet Against Occam. Worth reading. Mast cell disorders are treatable, if tricky. Less severe forms of mast cell activation or dysregulation of some sort (usually mast cells being triggered when they shouldn't be, but with normal numbers of cells) is actually quite common but often goes undiagnosed. Perhaps getting slightly more attention now as long-covid seems to have a mast cell element - and as mast cells are the first responder of the immune system and can be triggered by other viruses this is not surprising. Hard to diagnose and often not even considered. Afrin suggests that in those with fibro who have biopsies then numbers of mast cells are higher than normal (as well as having more nerves than usual) - but I'm not sure if this only relates to those who have small fibre neuropathy or were tested for that purpose, and not all with fibro do - I think from memory it might be about half. I've not had the biopsy as it isn't available here, and was diagnosed with SFN a few years ago from other testing (fibro since childhood). But my mast cells function is definitely not normal and I have had increasing signs of that over the years, since post-viral/ post-injury/ post-stress at 17, when I got a first hint of reactivity to chemicals. It is certainly true that low magnesium predisposes to mast cell dysfunction. Magnesium is a mast cell stabiliser. COMT enzyme function (dysregulation may also be linked to fibro) is also magnesium dependent. So might be worth testing magnesium if possible and treating (slowly and cautiously). Some more evidence now of fibro being autoimmune and many other autoimmunes also seem to trigger some level of mast cell issue. Hormones (both thyroid and sex hormones) affect histamine and mast cell function. Histamine is the mast cell mediator most people know a bit about but there are many involved, and they do have a function, we need them all, just as usual we need the right number in the right place for the right amount of time.....

[Sleepyhead_ in reply to Colourpink66]

Yes the weather doesn't help me either ive just got over an infection so that didn't help either.

[Yassytina FMA UK Volunteer]

Hello, really not nice for you having all this symptoms at once , reading members replies they seem too have them all at once too😟sometimes. Gosh there are so many symptoms people can get with Fibro, I can tick 3 of these, have you spoken too your GP about the tummy pain and nausea , maybe something too get checked out for a piece of mind, I learn a lot here when I read medications can give side effects, or even people with acid reflux , and that’s a good one too get checked out , as producing a lot of acid can make you feel sick xx

[bookish in reply to Yassytina]

It is more common for people to have low stomach acidity rather than high, then they struggle to digest food, which can cause the nausea. It also makes it harder to absorb essential vitamins and minerals. If you end up with acid suppressing medication (PPIs etc) on top of that then you are likely to end up deficient (particularly in vit B12) unless supplementing alongside. Some have to suppress acid, depending on condition (ulcers, Barrett's), but most don't. My personal experience, anyway. Chewing little chunks of peeled fresh ginger helps a lot!

[Sleepyhead_ in reply to bookish]

Yes I heard that it was actually low acidity.

[Sleepyhead_ in reply to Yassytina]

Thank you the doctors are aware of my tummy issues if I still have pain next week ill go back.

[Wilson16]

Yes I do. Sometimes I try to keep active and some days I have to give in and go to bed. I mourn the life I had before Fibro 😞 x

[Sleepyhead_ in reply to Wilson16]

I get where you're coming from.

[KimiJay]

Yep!... Get those and other things together sometimes.

Oxygen is a nice thing to have in the body certainly if you are in a place where it's freshly available! It's your best skill already so do it slowly, calmly and consciously a few times while gently waving your arms around yoga/tai chi/windmill fashion and see how you feel.

Breathlessness is somewhat scary but a cheap oxymeter which measures oxygen in your bloodstream when you stick your finger in can be re-assuring. Quite easy and fun to use and everyone else wants to get a reading too when they see you doing it. Even when you are stuck in a room, if you puff a bit it will go up quickly to achieve the desired 98 score.

[Sleepyhead_ in reply to KimiJay]

I have an oximeter aswell piece of mind.

[KimiJay in reply to Sleepyhead_]

Yes, the confidence it gives is so much needed. I'm hoping for some good weather soon and some gentle soothing sunlight. I use old fashioned smelling salts sometimes (gently sniffed at about six inches away.) The increase in oxygen count from that is re-assuring in a stuffy room. Hope all your symptoms are beginning to back off now.