Newbie to Fibro: HI all - first time... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Newbie to Fibro

graygirl profile image
8 Replies

HI all - first time poster here. I am so confused about fibro. For over four years now I have been treated for arthritis. about six months ago I had a flare up and my GP did the usual blood test that showed high inflamatry levels so she referred me to a consultant about my arthritis. He asked me a few questions then said - I think you have fibro not arthritis and sent a letter to my GP to give his diagnosis - subsequent bloods and xrays showed some changes of arthritis my GP confirmed his diagnosis of fibro and some arthritis - thing is I am an emotional wreck - I beat myself up everyday because in my brain I think I should be super human but in my body I am less then useless I really can't tell how I should actually be feeling havn't talked to anyone since diagnosis

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graygirl
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8 Replies

Hello and welcome to our lovely forum Graygirl, you are most welcome here!

Take a look around our Questions, Blogs and Tags, there is a wealth of information there, advice, support, personal experiences and friendship too! Please read our FibroAction Guidelines, you will find these under Blogs at the top, please select FibroAction Blogs and then scroll down. We ask all our new members to read these, many thanks.

If you have any worries or concerns, please do not hesitate to ask us, we are always only too happy to help. We all understand, we are all in the same boat here.

I hope you enjoy your time at FibroAction! :)

Ozzygirl64 profile image
Ozzygirl64 in reply to

Does that mean I have to put my milk bottles back on my face to read those guidelines again. I do read them hun but then I forget them again. If I ever cross the line let me know xxxxx

Feel free to off load here Graygirl, we all understand! It can be so frustrating can't it. Don't be too hard on yourself, you can't help having Fibro and its symptoms, it's not your fault, not your choice. It's very hard to come to terms with just after diagnosis, it's a shock and it takes time to come to terms with. Some people manage this earlier than others, for some it takes a long time.

We are all here for you, so please feel free to chat and discuss whatever you feel like talking about. There is always someone around who will hop in on a discussion. We will do our best to help and support you in any way we can.

Take care my dear, you are amongst friends here! :) (((hug))) xxx

Ozzygirl64 profile image
Ozzygirl64

Welcome to the site. I think we all feel like this at times and yes it can be so frustrating. Getting a diagnoses is not easy and some folk do get labelled as being arthritic when that is not always the case. Or you could end up with both as you have andme and probably numerous other members. And Liberty is right, you never asked for Fibro. I have come across people who do not understand it that have accused me of wearing it as a badge and that is just not the case. Regardless to say those people never made it past the 'f' in friend. I too will do my best to help being a 26 year veteran but diagnosed for 22 xxxxx

arrrrrgggggghhhhhh profile image
arrrrrgggggghhhhhh

Hello i was misdiagnosed at 15 with jra at 30 i was told i had fibro. it screwed me up and still coming to terms with it. i know how u feel.

Spirit profile image
Spirit

Welcome Graygirl.

We're a rum lot here, but we can cope with oneanother's gripes and moans - although the deal is you deal with ours too one day ;)

Much love and gentle hugs

Spirit x x x

Hi Greygirl. This is a wonderful place to help you understand, talk to others who suffer, and offload about fibromyalgia. It's helped me so much. Understanding and accepting fibro is the first step, then you can learn to manage it ( as far as you can) don't worry about how you should be feeling. And what you expect from yourself, take each day as it comes and learn what your limits are. We are all here to listen. Gentle hugs. Xx

Hello greygirl. Welcome to the site x some call fibro soft tissue arthritis. I personally think they're often related. It's good they've managed to clarify your diagnosis. I was diagnosed with all sorts, including chronic fatigue syndrome/ME some10 years before getting this diagnosis. I still don't relay know if its either/or. We can help ourselves though. Living one day at a time helps....and finding out what our toxic foods are. I pigged out on subway earlier in the week lol...all that bread (which I know I shouldn't have ) and now my necks seized up and o have headaches lol.....self inflicted this time x I just fancied a subway though...lol so i'm back to drinking water and resting. It's ok to have some fun every now and then.....juust know what to expect and go with it. The bad parts soon pass x

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