New to Fibro

[Smckntsh3]

Hi

I'm 39 year old mum of 3. In the early days of Fibro. Still waiting for diagnosis as I have felt like this for a well.

I went to see GP who said I need to be managed by specialist & when I saw Neurologist he said it should be GP.

I'm stuck in pain constantly tired what do I do.

Advice welcome please.

[Creativeness1]

Welcome to our lovely forum and supportive and caring here.

Please take a look at the mother site fmauk.org there is a lot of interesting information available.

The homepage has a lot of information on locking you're posts and navigating round the site. If you cannot see these because you are on mobile please let us know. The pinned posts are in blue on the right.

Good luck my friend

[Hidden]

Could you ask your GP for a referral to the pain clinic? they have been very helpful for me. Hope you get the help you need x

[Smckntsh3 in reply to Hidden]

I'm going back to GP next week it just seems no one wants to take ownership of my condition & treatment plan. So I'm just in limbo popping pain killers & sleeping like no tomorrow.

Thanks for reply. Was it hard in beginning for you. Who manages your condition.

[Hidden in reply to Smckntsh3]

Hi, I have been struggling with Fibro and eds for about 10 years. It's not easy to find the right care with a long term condition. I was diagnosed by a rheumatologist and treatment started with them but after a few appointments I was discharged (just with some medication) then the GP took over and referred me to physio, what was very helpful but there are only so many appointments you get on the NHS. Then I did not have any appointment or care for a few years except for an occasional appointment with my GP. But three years ago things got much worse and lost my mobility. I was seen again by a rheumatologist again who discharged me straight away (as they can't fix this condition) but he referred me to the pain clinic. They have been absolutely amazing to me, they organised injections, pain management groups, physio, scans etc, at the moment I still see a pain psychologist. No not because they think that the pain is in my head (they see that it's very real), but to help me through the grief process of loosing my mobility, job, independence etc. and to help me accept and give the pain a place in my life instead of me fighting it. I do take pain medication but don't want to be dependent on them for the rest of my life and become addicted. I find the best thing for me is pacing....... if i take life slowly and get enough sleep I cope much better and keep most of the meds for the occasional really bad day or to help me when I want to go out with friends or traveling days.

Wishing you all the best, listen to your body, it can take a while to find out what works best for you. Be kind to yourself xx

[Smckntsh3 in reply to Hidden]

Thanks

[BlueMermaid3]

Hi there

Welcome to the forum

Unfortunately getting a diagnosis of Fibromyalgia can take many many years.

Your GP needs to rule out a number of other conditions first that have almost identical symptoms such as Lyme Disease, Lupus and MS.

Once these have been ruled out you need your GP to refer you to see a Rheumatologist. They are the Consultants that deal with diagnosing the condition.

Having a supportive GP is so important when it comes to Fibromyalgia.

I genuinely hope that you are able to get some answers soon.

Wishing you a peaceful day

Lu x

Administrator

[Smckntsh3 in reply to BlueMermaid3]

Thanls

[Smckntsh3 in reply to BlueMermaid3]

What medication do people take.

I'm on Sertraline 200 mg, Constellation for IBS, Antibitic for re current UTI,

Temp Zyban as a top up for the antidepressant for mood.

Do anyone take stimulants prescribed by GP that they give for ADHD patients

[12george]

Welcome to the site. It took a while for a diagnosis, I was passed around departments and the neurologist has recently diagnosed fm. I am awaiting a referral to the pain clinic . I will have physio, acupuncture and physiologist again to manage the pain. Hope you get some good support on here, I am sure you will

[Smckntsh3 in reply to 12george]

Thanks

[TheAuthor]

Hi Smckntsh3

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so truly sorry to read of your situation and I would ask your doctor for a referral to a Rheumatologist as they make most Fibro diagnoses from what I have read. They can also recommend medication to your GP as well.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

[Smckntsh3 in reply to TheAuthor]

Thank you x

[TheAuthor in reply to Smckntsh3]

Good luck my friend x