Getting a fibro diagnosis

[_mandi76]

Hi,How have any of you got a diagnosis? I THiNK I may have fibro,I have been to my gp at least 5 times in the last year with extreme fatigue,every bone and muscle in my body is screaming at me,I am either boiling hot or freezing cold and I require assistance getting out of bed or out of a chair! I have sharp shooting pains if a night time in my legs and feet and am stiff as a board for most of the day! My gp won't even entertain the idea of Fibro?!?!? X

[Miss68]

Hi Hun, my gp referred me to a rheumatologist and she diagnosed me. Can’t you see a different gp if this one isn’t supportive?

I hope you get support soon Hun. Take care, stay warm and gentle hugs xx

[_mandi76 in reply to Miss68]

I have another appointment today to see a different gp,I will insist that something more gets done as I can't go on like this! I'll mention a rheumatologist and see how I get on! Thanks lovely 😘xx

[Miss68 in reply to _mandi76]

That’s good to know Hun. Let us know how you get on. You certainly can’t go on like this and more importantly you shouldn’t have to.

Take care lovely xx

[_mandi76 in reply to Miss68]

Am gettin referred to a rheumatologist! 😊xx

[YASMINTINA FMA UK Volunteer]

Afternoon I'm really sorry to hear whats going on with you, I'm finding through being on our forum many people struggle to get a diagnosis , I too had the same problem for years not being listened too either, in spring of this year I changed my doctor but at same surgery he was so in touch and diagnosed me with pressure points test , checked bloods they were fine generally listened to what I said was going on it was like a huge weight actually being told. I see you are seeing someone different today so hoping that goes better for you. Just like to say welcome to the forum it might be helpful to lock your posts as generally gets more responses from members if posts are locked and not open to anyone out there on the internet here's the healthunlocked.com/fibromya... take care xxx

[_mandi76 in reply to YASMINTINA]

Hi yasmintina,Thankyou for your support,I will keep returning to the gp until someone listens! Thankyou for welcoming me to the group also 😘xxx

[YASMINTINA FMA UK Volunteer in reply to _mandi76]

Your very welcome , good on you that's what I did, it will be great when I read your post to say you've got somewhere with diagnosis keep warm and take very good care xxx

[_mandi76]

Finally the gp is going to refer me to a rheumatologist 😊xxx

[Stevejj]

You do have to be persistent with the GP took me a year to get a referral xx

[_mandi76 in reply to Stevejj]

Yea I've been back n forward so many times! I think to be honest the gp is finally fed up of seeing me 🤣🤣xx

[Stevejj in reply to _mandi76]

That’s what mine was look since diagnosed completely different now Is brilliant with me xx

[_mandi76 in reply to Stevejj]

I think they think it's all in your head but he could visibly see today that I was in pain and not taking no for an answer xx

[Stevejj in reply to _mandi76]

Good for you Hun that’s what I was like. I was so unsure what was happening to me I took it for 9 months. Then one day I was like no more and let them have it a bit lol xx

[_mandi76 in reply to Stevejj]

It doesn't help that I'm also suffering badly with reflux constantly so he got both barrels today lol 😂 xx

[Stevejj in reply to _mandi76]

I have that too hate it good for you Hun xx

[_mandi76 in reply to Stevejj]

Fun this gettin old lark eh 🤣🤣xx

[Stevejj in reply to _mandi76]

No it’s not I feel 69 not 39 xxx

[_mandi76 in reply to Stevejj]

Yea I'm feeling about 61 not 41 🤣xx

[Stevejj in reply to _mandi76]

Awww Hun it’s horriblr I used to be so fit and active now I’m like an old man xx

[_mandi76 in reply to Stevejj]

I've never really been into fitness or anything like that but I would like to be able to get out of bed without looking like a granny lol xx

[Stevejj in reply to _mandi76]

Me too I got up this morning and my neck went pop xx

[_mandi76 in reply to Stevejj]

Ouch!! Xx

[Stevejj in reply to _mandi76]

I know has affected me all day as because me neck hurts sitting different now my chest hurts xx

[_mandi76]

It's horrible ain't it,my back is killing me xx

[Stevejj in reply to _mandi76]

It is Hun hate labels on clothes too and recently tight fitting stuff xx

[_mandi76 in reply to Stevejj]

God aren't we whinging old buggers lol xx

[Stevejj in reply to _mandi76]

Yep lol I’m quite smiley though xx

[_mandi76 in reply to Stevejj]

Oh absolutely so am I!! Xx

[Stevejj in reply to _mandi76]

Got to smile with fibromyalgia otherwise you would get so down xx

[_mandi76 in reply to Stevejj]

You certainly would,I'm not even sure that I defo have it but I can't think of anything else that causes all the things I have! Xx

[Stevejj in reply to _mandi76]

I was like that had so many tests and everything was coming back negative then got referred to rheumatologist and she diagnosed me finally xx

[_mandi76 in reply to Stevejj]

Hopefully that's what will happen with me! Work seem to think I'm just making it up I'm sure!! Xx

[Stevejj in reply to _mandi76]

You managing work Hun? Xx

[_mandi76 in reply to Stevejj]

Yea I'm a carer aswell so it's really physical xx

[Stevejj in reply to _mandi76]

Fair play I have been off 14 months now after struggling for 5 years xx

[_mandi76 in reply to Stevejj]

I'm sure it will get to that stage but all the time I can do it I will as I live my job xx

[Stevejj in reply to _mandi76]

Good Hun I feel like I need a carerer sum days lol xx

[_mandi76 in reply to Stevejj]

Your wife probably feels like one if ur that bad lol xx

[Stevejj in reply to _mandi76]

Lol bless her feel sorry for her she has been very good xx

[_mandi76 in reply to Stevejj]

They do suffer don't they the partners lol xx

[Stevejj in reply to _mandi76]

Yes does yours? X

[_mandi76 in reply to Stevejj]

He does,I'm constantly nagging at him lol xx

[Stevejj in reply to _mandi76]

Lol mines the other way round I’m def the women in the relationship lol xx

[_mandi76 in reply to Stevejj]

Hahahahahaha at least u admit it!! He takes no notice of me half the time lol so I'm just nagging to myself xx

[Stevejj in reply to _mandi76]

She ignores my nagging too lol xx

[_mandi76 in reply to Stevejj]

Think they become immune to it after a while lol xx

[Stevejj in reply to _mandi76]

Yes or just ignore us lol xx

[_mandi76 in reply to Stevejj]

Yea that happens most of the time actually lol 🤔🤔🤣xx

[Stevejj in reply to _mandi76]

Lol typical women lol xxx

[_mandi76 in reply to Stevejj]

Oooo careful lol 😂 xx

[Stevejj in reply to _mandi76]

Lol I’m sorry 😂😂😂x

[_mandi76 in reply to Stevejj]

Forgiven 🤣🤣🤣xx

[Stevejj in reply to _mandi76]

Thanks Hun phew xx

[_mandi76 in reply to Stevejj]

🤣🤣lol xx

[Stevejj in reply to _mandi76]

U up to much? Xx

[_mandi76 in reply to Stevejj]

No just trying to find something I haven't watched on Netflix lol you? Xx

[Stevejj in reply to _mandi76]

Watching James Bond I’m ITV 4 xx

[_mandi76 in reply to Stevejj]

Can't stand James Bond films lol am watching bridesmaids xx

[Stevejj in reply to _mandi76]

Awww no don’t do it lol xx

[Hareyfarey in reply to Stevejj]

Hi, Could i ask how long it took for the rheumatologist to diagnose you? I have my first appointment next Monday!

[Stevejj in reply to Hareyfarey]

My first visit she diagnosed me and then released me back into the care of my GP x

[Hareyfarey in reply to Stevejj]

Thank you. Could I ask, how do I start a new question on my iPad?

[Stevejj in reply to Hareyfarey]

Go on the first tab and click question then you can post question or a post x

[Hareyfarey in reply to Stevejj]

Thank you, I’ve just made my first post

[Gurtie]

Hydrotherapy helps

[Gurtie]

Hydrotherapy helps

[Gurtie]

I would like to bring out a clothing line for people with fibro made out of soft dressing gown material or terrytowelling which is soft but make the designs supportive of the frame but also stylish just a dream I have fibro but find most materials uncomfortable no elastic or zips

[_mandi76 in reply to Gurtie]

What a great idea!!! X

[Gurtie]

Thank you I have nice clothes but live in my soft fleece pjs so I thought if I could use the soft material and make day clothes I would be comfortable and stylish women would love the soft and sweat absorbant terrytowelling bra and undies without elastic and contoured cup support of a double layer of terrytowelling to lift and support Brest tissue without any constricted wires or elastic the straps could cross over the back as a y shape for back support I'm always trying to think of ideas to reduce pain

[Cat5559]

I had foot surgery and surgeon referred me to a rheumatologist to see if I had rheumatoid arthritis but after tests I was diagnosed with osteoarthritis and fibromyalgia ask to be referred to a specialist of your doctor won’t acknowledge your condition you are entitled to seek a second opinion

[kimbenson21]

I really hope you get a better outcome from this G.P. if need be, be forcefull. Good luck.