Fibro v endo

[Katzak]

Hi I'm new here. I have severe endo,am waiting for a bowel op in a few weeks. Other symptoms are stacking up though which worry me but ive left as they flare up then ok ish for a bit. Severe fatigue,aches,pains,muscle stiffness (neck) leading to migraines, pins and needles at night,difficulty swallowing. Some of these I just dont think can be put diwn to endo. My question is, how to approach with gp and is there any point as there is nothing they can do about it if it was fibro? Many thanks to you all x

[Katzak]

Bladder pain and kidney probs too..things aren't very good atm...!!

[tulips123 in reply to Katzak]

Sorry, should've said 'aches and pains and fatigue' as well as brain fog lol. Forgetful! Take care. Weekends can be quiet, but i'm sure members will get back to you. xx

[Katzak in reply to tulips123]

Thank you yes a few months, brain fog definitely and its getting me into trouble at work and causing stress. Maybe I'd feel better knowing what it was xx

[tulips123]

Hi Katzak, welcome to friendly forum. Many of your symptoms is something I can relate to as Fibro Myalgia. Have you had these symptoms for a while? Stress is something that can spark FM into life, or enhance the symptoms. I dont think every FM sufferer has exactly the same, but the main part are the aches and pains, sometimes comes and goes and others flare up from time to time.

Perhaps worth talking to GP and explain what's happening, and he may refer you to Rheumatologist.

I'm sorry you're going through so much, but hopefully the Medics can help with what's happening. Dawn xx

[Janet28]

Hi Katzak Welcome to our wonderful forum 😀 I'm sure you will find it invaluable chatting to others who have similar experiences and at different stages of their lives with fibromyalgia.

I am sorry you are so unwell. I would write all your symptoms down & even keep a little diary as things occur & show your gp. I'm presuming you have had lots of blood tests ! Usually with all those symptoms, your gp would eliminate other conditions like Lupus, RA, Limes Disease, MS as fibro symptoms do mimic all of these conditions. If they all come back negative, the next thing would be to refer you to a Rheumatologist.

Please do go check out the mother site fmauk.org where you will find lots of useful information and links on fibro.

It's a good idea to lock your posts to the community so they are not accessible from the internet. If you look to right of screen you will see under "Pinned Posts" a number of blue links & instructions on how to lock it.

Peace, luv n light

Jan xx

[Katzak in reply to Janet28]

Thank you I'll try that and will keep you posted. They do want to do tests but ive not let them as ive been trying to prove its all endo but...!x

[Janet28 in reply to Katzak]

Your very welcome ☺ it does take an awfully long time to diagnose fibro & some GPS drag their heals & others refer quite quickly. I think the General rule of thumb, is lots of blood tests etc. Then once they have eliminated everything else & you are still having the same symptoms for a certain period of time, they then normally refer you. Not that the Rheumatologists do much once they diagnose you, you are normally given a leaflet about fibro & refered back to your gp, they do sometimes advice on medications to try. I don't want you to be dismayed but it's good to know what usually happens.

Hope this helps

Luv Jan xx

[Lorsxxx]

Hello and welcome I'm new here myself, my sympathies are with you,as I have crohns disease and fibro and am also facing mayor bowl surgery in the next few months,anyways wellcome

[Katzak in reply to Lorsxxx]

Hi ive just had a bowel resection due to severe endometriosis. It had eaten through the bowel, many if my organs were stuck together. Its early days but am now waiting to see what symptoms I'm left with once it all settles down, def had an impact on my whole body so unsure atm if u have fibromyalgia or if it was the endo. How are you,did you have your bowel surgery ?