Just wanted to ask how do people get their families and friends to understand what they are going through?
Im having a big flare up atm which is causing me to have a bit of a melt down - crying all the time etc..
I think my family and friends try to understand but it seems like they just think im moaning and exaggerating. I have tried to explain to my hubby a few times and gave him some info to read when I first found out. Because I try so hard to get on with life and make everyone think im ok he seems to forget that I am not ok and that I am in constant pain and always exhausted.
The other thing is my hubby had to have a shoulder operation just after I got diagnosed and it went wrong and he ended up having to have another op - long story short he never fully recovered and always has pain in his shoulder. The reason I am telling you all this is because I find it very hard when I try to tell him how much I am struggling he compares fibro to his shoulder pain - I know he is in pain but find it really upsetting to basically just be brushed off because he has some pain in one area. I dont know if this sounds terrible of me of makes sense to anyone.
How did everyone get their husbands/ families to understand??