The much loved topic off weight. - Fibromyalgia Acti...

Fibromyalgia Action UK

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The much loved topic off weight.

tess10 profile image
24 Replies

I am start to read blogs and questions regarding weight worrie. I personally do not feel the slimming tabs are such a good idea, as they count cause issues with other meds we are on, I also feel its a good idea to see which of your medication can increase weight, for me that Anatriptil Splet wrong.

So here what I been wondering would anyone benefit from having a sight attached to this one where we can all discuss food, weight, the stresses, what worked for ourselves could that help other out, as its not as straight forward for us to diet, but I feel if a small group of us would feel bet getting advice, encouragement, support, share receipes etc

Here is a small one to kick start for those who like fish, cheap and full of goodness.

Potatoes, Pilchards in tomote sauce, and gratted chess.

boil and mash potatoes with small amount of marg and lay it at the bottom of oven dish

Open the pilchards open each one carefully to remove bones, then mash together. Then lay on top of potatoes, adding any extra tom sauce, finally top with grahated cheese

pre-heat oven. put on middle shelf and cook at gas mark 6 for 20-25 mins.

So what you reckon Fibro family good idea or not. hugs and smiles xx

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tess10 profile image
tess10
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24 Replies

You're making me hungry now Tess and it's almost 1am lol! Seriously I love this idea of recipes etc, weight loss ideas etc.

Probably better not to mention diet supplements though and sporting diet drinks etc., let's do it the healthy and responsible way especially as we all take meds and have to be careful.

Let's get posting folks! :)

julieevh profile image
julieevh

I'm allergic to fish and to slimming diets; too much time, money anguish and stress is wasted trying to get to an unattainable size.

A friend of mine had a gastric band fitted last year; she has lost loads of weight, but the skin is hanging off her and it has aged her 15 years easily.

Not so many years ago we were told that the most healthy size was a size 14 yet now size 14's seem to consider themselves clinically obese.

Life doesn't begin when you reach a certain weight or size - I've known a woman since Primary School who STILL puts off doing things until she is a size 10. Yet she has been a consistent size 16 - 20 since she was 13; 40 years on it is about time she accepted herself as she is!

Be happy as you am and stop fueling the coffers of the slimming industry - if all these diets and programmes worked we could all be a size 10; some of them are downright dangerous.

Yes I'm large ... but I am not going to have a negative self-image just because I have a big bum!

Julie xx

PS fish does actually give me an anaphalctic shock :-(

SootyB profile image
SootyB in reply to julieevh

If I get depressed about my weight, I stick 'Fat Bottomed Girls' and 'Big Girl (You are Beautiful)' on in the car and do the driver-seat boogie to them - soon sorts me out!

I'm always being told that my weight affects things - my polycystic ovaries, fibro, etc. - but then I meet 3 people skinnier than me, with the same condition, only far worse. I know it's not great to be chunky, health-wise, but it's certainly not the big deal they make it out to be.

Sara xx

getactive profile image
getactive

I think it is a great idea but let's call it healthy eating! I have masses of weight to loose and I know my mobility will be somuch better when I do. When medication says it can cause weight gain it is because it increases appetite so if you eat healthy foods and not junk food this helps anyway this comes from a very overweight junk eating sue x

tess10 profile image
tess10 in reply to getactive

Great Idea to use a different name diet doesn't sound great. I've emailed LibertyZ to ask for a seperate link to it to make it work easier, having to keep returning and finding old blogs will get tirersome hugs xx

in reply to tess10

As I explained to Tess (Ingrid), unfortunately we don't have the facility to separate blogs etc at the moment but hopefully with HU working on implementing changes all the time, it won't be too long before we can section certain subjects so they are easier to find.

For the moment we have to keep posting to keep the blogs etc as Recently Active, Popular or Newest so that's the best we can do for now.

bonnielass profile image
bonnielass

What a great idea, as well as supporting each other with our fibromyalgia it would help us to also support with our weight problems.

I lost 3stone when i joined slimming world last year, but it became too expensive and now i have put all the weight back on, and so i am really mad at myself for allowing it, but well no-one forced the food into my mouth.

Is it possible that fibro causes you to have sweet cravings? I live alone and like others with fibro it is an effort to stand and prepare and cook a meal, due to pain and dizziness, fatigue etc. and so i just reach for crackers and chocolate and cakes, which i know isn't the right thing to do.

Take care

Gentle hugs

Bonnie Lass

i think its a brilliant idea.and i like that recipe too .my fella wouldnt eat it but when i was a kid i used to have pilchards on toast for my tea.

yep id go on it for defo.

tess10 profile image
tess10 in reply to

it was a childhood dish my mom created because we were poor lol but its one of my fav, plus you get get a small tin just enough for 1 lol hugs xx

yep i agree, i have also put bk on 2 stone that i lost since being on all the meds, and yes i have craved more sweet things, however hard i try to stay away from it, even if i dont really need to eat it!

no matter how i try as i do eat healthy etc but not as mobile as i was, nothing shifts.

i am giving reflexology a go on friday, was talking to the lady and she said it may kick start the system so will let you know how i get on, anything is worth a go, plus all the drs says is nothing we can do all down to the meds,

lets get recipe posting

cherie

tess10 profile image
tess10 in reply to

Hi Cherie I know it can be hard going, have you thought of starting with chair excerises, might help with motivation hugs xx

Mills profile image
Mills

I'm up for it Tess, it's a great Idea, I have a sweet tooth but I have gone off meals! they just don't interest me any more in fact I mainly live on yoghurt (the unhealthy variety strawberry & west county cream Mmmmmm) & choc buttons ( must be cads) & coffee & that's my diet, I occasionally have a BLT but not very often. Some days I don't eat at all....just not in the mood. This is only since I got F/M.

Take care. Gwen. x

jumarcat profile image
jumarcat

it is a great idea. I have been following weight watchers for last 2 years. weight loss is slow.... i have under active thyroid as well... but I have lost 2 stone. I feel so much better and having me wee dog to take out twice a day helps. If I didnt have him I would be very worried at how mobile I would be. ( I got him before I was diagnosed, and know I wouldnt have got him if I had known what was wrong with me first, so it was the best thing, as I have to go out).....I am working hard again at the weight loss plan as I would love to be a stone lighter by christmas. Good luck everyone.

Teddysmum43 profile image
Teddysmum43

Hi all.ive lost 3.5 stone with slimming world but suddenly lost my motivation to go,I became so low on that diet. I am seeing a nutritionist next week to try and address my problems. Slimming world deals with normal people but is very lacking for people with extra dietary needs. Since I stopped sw the weight is creeping back on. I have under active thyroid as well which is currently out of kilter. Anyway once I've seen her I will let you know what she says and what eating plan she puts me on as it may help some of you although I know nutrition is quite individual. I do not want the weight to go back on as I'm more mobile now and able to go to the gym.

Midori profile image
Midori

It can be very difficult to lose weight when on medication, and with restricted mobility. You should consult with your doctor first, especially if considering a Slimming Club. as their methods may not suit your meds. Ask to see the dietician, he or she will have much more knowledge.

I'm happy enough with my weight as it is, and as I cannot afford new clothes I'm not about to diet!

Cheers, Midori

tess10 profile image
tess10 in reply to Midori

Hi Midori its not all about loosing weight, its about support and healthy eating, so if you have any reciepes that you could share with the rest of use that would be great hugs Ingrid xx

Recipes would be a lovely idea. FM means I am sensitive to so many foods. Nightshades (potato, tomato) dairy, wheat, yeast, sugar, caffiene, msg, bananas, eggs, meat. These are not allergies so I can tolerate small amounts but I risk IBS and energy relapses and pain when I do.

I find meal including UncleBens rices, with green beans and fish are really easy and safe meals. i'm eating aot of raspberries at the moment.

Any safe change to this diet is welcome though.

My weight swings and I can crave carbs big time....especially at night when insomnia is hitting. I know its a bowel inflammation thing though cos I look pregnant rather than an all over weight. I swing between 11 stone and 13. I definately feel better at and below 11 stone and would LOVE to get back into the 9 /10 stone range. Its not so much a body image thing as feeling better at lower weights. however I must admit it doesn't help with self esteem when my clothes don't fit !

I'm sure a lack of exercise is part of it, but with CFS as well the payback really isn't good. Boom and crash is not acceptable. Within pacing though I find I can use a wii fit and swimming in a warm pool.... but by swimming I mean a good old float. Not lane swimming. Using a small trampoline can move the lymph system which helps the body deal with toxins too..... but because of the amount of pain I've been in recently I haven't done any of the above LOL. My weight is heading up to 12 stone after being just under 11 earler in the year. Its soul destroying. It seems to be a bit of a catch 22. When the weight is going on I'm more toxic and more likely to crash so exercise is less possible. When smaller I have more energy and can exercise more. For me the turn around is ALWAYS to do with monthy hormones. My whole body shuts down. Couple that with a crash and I don't stnad a chance.

I think my thyroid is intermittantly low. I tried treating it years ago, but got really ill taking stuff to increase thyroid function (not thyroxine). Taking meds when the thyroid is acting normally gave me some major panic attacks. I think adrenal function comes into this too. Adrenal stress and fatigue gives many symptoms similar to CFS

pondminstrel profile image
pondminstrel

hi all,i have struggled with my weight for a while now,last week i slept for three days! and sweat would literally run off my chin and hair..i mentioned it to doc who took blood tests,it showed i had underactive thyroid...doc told me that with me having RA and fibro plus very low white blood cells, my imune system is shot at,and that can cause the thyroid gland to malfunction!! god! anything else that seems to stem from this flippin fibro!! but thought i would mention it as sweating and weight gain come with fibro,and perhaps we overlook other things that we suffer with,puting it down to fibro...i said to my doc ..i will come in one day and say ooh my left leg went black and dropped off and you will say..oh yes that will be the fibro! lol..and thyroid problems have remarkable simularitys [soz couldnt spell that! lol] eg:migrain,joint pains,upset tummy,hair thinning,dry skin,sleep disorders etc...so worth getting stuff checked i think.xxxxx

rainbowdancer profile image
rainbowdancer in reply to pondminstrel

hi

I was just reading through these and saw your answer. you could have been talking for me I too have all thes problems i am actually on thyroxine high dose ,i have what I call sleep sweats as when ever I am asleep or in bed I am soaking . I have long hair and it can be soaked to my ponytail.

My Dr is the same blames all on my fibro ,but the fibro guy told me yesterday if you have Thyroid probs and CVFS you will have fibro. i also have very low platelets but not sure why....do you know if they are connected to fibro?

You made me laugh with what you said to your Dr,as I have said the same. My right leg drags for some reason I find it very heavy and cant lift it to get in the car or put my feet up,and my husband lifts it to get me into bed. Dr said " Oh prob to do with your Fibro " I thought .....oh that ok then we will ignore it then shall we !!

My dr is also always on at me about my weight but the more weight I carry the harder to exercise and no exercise =more weight so vicious circle eh!!

i am changing my food rutine around as from today I am eating Protien for breakfast and lunch for my energy,and carbs for tea or supper to lull me to sleep....least thats what the Fibro guy said...so gonna give it a try.. :-))

Lovely to have so many people on hear to chat to x x

Gentle Hugs

Rainbowdancer x x x

pondminstrel profile image
pondminstrel

hi hunny,if you have fibro your imune system is usually low,my white blood cells were so low i went to cancer specialist as doc thought it could be lukemia,cancer specialist said i was clear and that low white blood cells were coz of fibro,so that affects imune system which in turn affects thyroid..thyroid low or high affects joints,sweats etc....hence the falling off of legs etc lol..everything seems to be conected...but you can get carried away if you put all your symptoms in Google it probly come up yellow monkey fever!! xxxxx

It is so funny reading all our comments. It does mk me laugh at times!

What is it they say laughters good for the soul x

My Mother always used to say to me don't say "Diet" as you will feel under pressure, say "Healthy Eating Plan", so I have this firmly stamped in my brain lol. Let's face it if we all ate healthier we would lose weight, wouldn't we?! I eat healthily, but this darned extra weight isn't shifting, so it must be lack of exercise! My next problem is working out what exercise to do when I am stuck in the house and don't go out, hmmmm that's the tough part . . . . . ?!

chezzie2010 profile image
chezzie2010

Hi i am chezzie; I am new to this site i to have fybro,Ibs,Arthritis( multi joint,) like many of you i have extreme sweats where i have sweat dripping off my chin this makes me embarrassed i rarely socialise.Also i have read that some of you suffer from fatigue, and weight gain,unable to sleep at night,heavy legs.Reading all this has put me at ease somewhat.As i have all these symptoms and had my gp saying its all due to having fybro.I have felt as though he couldnt be bothered and i felt like he thought i was a hyprocondreact.I came away from my gps thinking i was dying i was in so much pain and nobody was helping me.Thankfuly i was sent to a specialist at the hospital who diagnosed me, at last now i have a name for my illness but that was it.I had to go on the net to find out exactly what i had.NOW i have found this site and read most of your posts and pared my symptoms with what i have read.I am not having a moan im just glad i have found others with the same diagnosis as me.I wish all of you didnt have to suffer with this invisable condition.I am looking forward to having conversations with you all at sometime I wish you all well and god bless you all xx

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