so much pain: I was told i had... - Fibromyalgia Acti...

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so much pain

fibogirl profile image
8 Replies

I was told i had Fibromyalgia in May this year, i was working full time. but over the last few months i had to give up work through all the pain I was feeling. i suffer with pain all over my body. has this happened so fast to anyone else?

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fibogirl profile image
fibogirl
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8 Replies
Pakslady profile image
Pakslady

Mine came on slower, but it now feels like I have flu most of the time. I'm afraid the pain is part of the condition, but it can be managed to an extent. Some ppl like myself find heat packs ease the discomfort whilst others use cool packs. You should also get your doc to prescripe some good painkillers, such as the stronger strength co codamol and ibruprophen (if you don't have stomach problems). If you are mobile enough, then a warm bath can also be soothing. With specific areas of pain tens can also be useful.

Homer profile image
Homer in reply toPakslady

Mine came on very fast, it started with a tingling in my right arm and then within seconds my arm was hard and painful to touch within hours the other arm went the same then with in days the rest of my body started being painful and the rest is history so yes it can come on quick

Nicki xxx

fibogirl profile image
fibogirl in reply toPakslady

I am on morphine, Tramadol , and Gabapentin all high doses. but always feel in pain, and have so much numbness and cramp in my hands, they say i have to learn to live with it. but that's easer said than done.

shaz66 profile image
shaz66 in reply tofibogirl

ive been precribed every painkiller all but co codamol have given me side effects then four days ago my doctor give me patches called lidocaine i was willing it to work but as of yet it has had no effected on the pain my doc said that there is nothing they can do now accept just try to manage the pain.like yourself nothing is helping ive suffered fbs for five years

fibogirl profile image
fibogirl in reply toshaz66

Its crap.. its OK for everyone to say live with it, they don't have have to wake up feeling so stiff like your 90yrs old lol, or with so much pain in your joints,

Amanda profile image
Amanda

Hi,yes I was diagnosed not long after you.I was self employed as an OFSTED registered childminder and also provided respite care to kids with special needs.I built my business up over 13 years and at my last inspection I gained mostly goods,one outstanding and one satisfactory (for paperwork which I'm not too good at!) At the end of may this year I recieved a visit from an ofsted inspector who said I couldn't work any more as it wouldn't be safe.so that was all my hard work gone!from then my symptoms have progressed frighteningly fast.I now can hardly walk and use a mobility scooter.I'm waiting for physio and an occupational therapy assessment to get further help and I'm in the early days of the painkiller journey.

deanna profile image
deanna

I hve recently been diagnosed with Fibro although they say this is what the pain has been for the last three years and although I was relieved to know what Ihad I am finding it very hard to come to terms with the pain. Although my partner is wonderful and does so much for me I get very depressed as I miss being able to do all the things I enjoyed ie gardening and taking my dog for a walk and going out to places and walking, But I have now devised a plan of doing a few things gradually and then trying to do a bit extra the next day but if I find that I have done too much I just rest completely until such time as I feel better. I hope that things improve for you soon the pain does come on fast my son has had it for a couple of years and his pain came on very fast but horribly it is something we all have to deal with and each person does it in different ways to suit themselves good luck x

SootyB profile image
SootyB

Mine started very suddenly with pain in both hands and wrists (not present at the start of the morning, agony by 10.30am), which progressed over a week to the point where I needed 5 months off work. The pain hasn't got any easier - in fact, it's now all over my body, and I can't find a comfortable position to stand, sit, or lay in - but I am back at work, purely because they couldn't find a solution to the problem, and I'm stubbornly refusing to give in to it at 32, although I know one day, I may not have the choice.

It's hard to accept, especially when it has come on so quickly. I try to avoid too many painkillers during the day (I'm a clinician working with sharp instruments, so it's not advisable to be too drowsy), but dose up at night and when I'm doing my admin. I also use a pain hypnosis CD (it's more visualisation, really, as you're aware and alert throughout), which seems to help a little.

Hope you can find ways to cope.

Sara xx

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