In agony: After my lovely lunch out... - Fibromyalgia Acti...

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In agony

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After my lovely lunch out with my daughter I new I would suffer it never did I imagine it would be this bad I have taken the maximum dose of my painkillers and they haven't even touched it my left hip is the worst just can't get any relief don't know what to do

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getactive
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Can totally sympathise but with me it's my own doing...... After the horrendous side effects of last meds I went cold turkey on all my day meds it's been 9 days and I can hardly move. I have an appt next weds with my own gp he's on holiday this week. The problem is I am now so scared to try anything new as its the summer holidays and my husband works so I have to be mentally focused to look after my son who is autistic. My old old meds don't touch the pain and the osteopath relieves the pain in one place for a few days so the pain pops up somewhere else. He did right side of my neck and shoulder on tuesday so today just crawled out of bed with my back on fire. I am supposed to go out on my mobility scooter today and food shop ... Co op then deliver take my son to my friend who has a child with similar condition and I haven't been able to get to see my mum in weeks as I have hardly left the house expcept for taxis to drs or osteo. And If I go to my mums in pain she gets upset a seeing me, at the moment i dont think any of those things are going to happen today. now I.m rambling sorry for whining on your thread

Helen xx

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getactive in reply to

Oh dear I sympathise with you and having your son who is autistic must be extra hard work. My son has mild cerebral palsy and some learning difficulties and is a huge worry. He is 17 and wants to do his own thing. He is so vunerable and easily led I worry what is going to happen. Take care Sue xx

I hit those times too. All I can say is that they pass for me. If it goes on for too long maybe your GP could review your meds. Are you seen at a pain clinic?

I have my first appointment with the Doc who diagnoses fibro on 6 August. I currently have a diagnosis of CFS plus a host of pain conditions which my GP and I both think is actually fibro. I plan to to come off of all my pain meds for that appointment as I want him to see me at my worst. I've actually seen him before for one of the pain issues - a 'trapped nerve' in my shoulder. I found him very rude. He told me to stop talking. I said 'what you mean is shut up then' and he got a bit flustered. It seems there have been complaints about him before. Without my pain meds, I might be tempted to answer back this time so I'll have to keep my mouth tightly zipped. I need a specialists diagnosis to stop being kicked off of ESA onto JSA after my cancer treatment is finished as it seems that the horrible hormonal treatments don't count!

Really hope this phase passes for you.

Whippet

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getactive

hi whippet thanks for your reply I saw a doctor at the pain clinic who just changed me onto pregablin and referred me to the pain psycholgist he is ok but I see him every 3 months so we don't seem to get anywhere anyway take care sue x

The only consolation is that generally these ghastly phases pass and we tend to stabilise a bit. I am sure most of us have gone through the same thing, I know I have.

It might be worth speaking to your Doctor Getactive to see if your meds need changing to something that will help manage your pain better. It's worth a try.

If you can take it easy for a while, don't overtax yourself and have your rest periods too. It doesn't have to mean going to bed often, just relaxing in a comfy chair will help. I really hope it eases for you soon, take care.

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