Fibromyalgia Action UK
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Chronic Pain in head

Hi guys


I have been getting horrendous pains all over my head but especially the left top side of my head and also when I get these pains my memory seems to become absolutley terrible. Is this normal feelings and symptoms to get with fibromyalgia? I have been GP's had scans and seen rheumatology only the other week and they just look at me as if i am on another planet when i try to explain.

If there is anyone out there that could put my mind at ease and tell me that I am not going mad It would be loverly to hear from you.


5 Replies

yep that fibro! iv been having this bad this week


thanks hun

I hope you have had a better week xx


Whilst this could be Fibro related, the symptoms also relate to Myofascial Pain which can vary depending on the location and severity of the problem. People describe deep aching pain which can be either constant or intermittent (comes and goes). This can be accompanied by burning or stabbing pain, weakness, tingling, increased or decreased sweating, stiffness, sleep difficulties, or dizziness. We also get these sensations with Fibromyalgia.

Fibromyalgia is typically the syndrome blamed for burning head and neck pain; however, Fibromyalgia has its own set of symptoms apart from Myofascial Pain dysfunction, and the two should not be confused with one another. Symptoms of Fibromyalgia include pain, but there are also a multitude of other symptoms such as sensitivity to noises, perfumes, crowded places, light and a host of other symptoms separate from those of Myofacial Pain dysfunction. It's all a bit of a minefield isn't it and you aren't going mad Tinkerbell. :)


Thanks LibbyDe

I have been going back and forth to the drs for months and they just say its my rheumatoid arthritis or look at me like here she is again wasting my time. I have heard of Myofascial Pain and think you may be right so yay yet another problem i have to live with.

Thanks for putting my mind at rest that I am not going MAD!!!!

Tinkerbell xx


You're certainly not going mad Tinkerbell, I do think you need to push for a referral though or a second opinion just to be absolutely sure that you get the correct treatment. Take care. :)


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