So heres the thing!!! Ive had fibromyalgia for approx 6ish yrs now and since being diagnosed ive managed it quiet well; flare ups were minimal and i contained them with co codamol, pressure bandages and gel rubs. They caused minor distruption to my life and seemed to pass quickly; in fact I trully questioned the validity of fibromyalgia and thought it was a cop out for lazy hypochondriacs. Then over time the reality of fibro kicked in!! I began suffering from a weird collection of symptoms the main ones being pain pain and o yes pain a lack of quality sleep, coupled with periods of chronic anxiety, a combination of food intolerances leading to allergies so severe im now diagnosed with anaphalaxis and Im required to take allergy tablets daily and carry a life saving injection of adrenaline to stop me from dieing from anaphaletic shock. Despite these medical conditions I strove to maintain a normal life I continued to work, with minor alterations, i.e. reduced working hours from fulltime (approx 37-40) to part-time(20) and still managed to see friends though less frequently and for gentler social activies like meals outs instead of nightclubbing and nites in girly gossiping with a wee cup of tea instead of a few glasses of wine.
Unfortunetly my ability to manage fibro has deteriorated over the past few yrs; in particular the last 18 months, I am seeing my Gp more frequently beginning to question her knowledge in relation to treatments for fibro and my abiility to cope without a proper treatment plan including taking stronger pain meds :-(((
I have had to give up zumba and salsa as i can no longer walk, never mind dance, without pain. Im permently exhausted, constantly fighting of feelings of depression and if im honest from time to time a desire to stop the pain permantly!!! I have recently been signed off work for 8 weeks due to another flare up although i pushed myself back to work after 3 weeks as financially i just couldnt afford to be off that long
I finally gave in and applied for Dla around may/june 2012 although i hope to continue working. I seen this benefit as a way of paying for expensive complimentary medical treatments & aids (massage treatments, pain relieving gel rubs, pressure bandages, braces shoe insoles etc etc etc which I hoped would benefit my health and help me maintain a career that i worked long and hard to achieve.
Today i got a letter stating that my claim was unsucessful apparently i dont meet the criteria for either care or mobility - try telling that to my children who cook clean wash & dress me when im having a flaire up and am unable to walk from my bed to the bathroom unaided a distance of a few yards
Neway im gonna appeal this mad, unfair and unjust decision nd would appriciate any advice tips and support.
P.s. just talking about it helps im sooo gonna fite this!!!!