DLA stopped: Hello this is my first... - Fibromyalgia Acti...

Fibromyalgia Action UK

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DLA stopped

tivoloschoice profile image
10 Replies

Hello this is my first time on here. I am looking for help. I have been a fibro sufferer for approx 5 years i also suffer with depression, anxiety, osteo arthritus, chronic spondilytus in my neck and shoulders, psorisis, bursitus. I have been claiming DLA for 5 years and have a car on mobility. My claim ends in April and they are renewing it. I am extremely worried and anxious as i dont know what to do. Ps i also suffer with insomnia. X

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tivoloschoice profile image
tivoloschoice
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10 Replies
tivoloschoice profile image
tivoloschoice

I am so sorry i meant to say that they are NOT renewing my claim.

LindseyMid profile image
LindseyMid

Hi tivolo...

Here is some info on benefits, including sources of specialist support:

fibroaction.org/Pages/Benef...

DLA is being replaced by a new benefit - PIP - and it may be that you will now have to apply for this. Here is some info on PIP:

gov.uk/pip

benefitsandwork.co.uk/perso...

If you email info@fibroaction.org, then our Administrator Emma can send you out guides from Benefits& Work (for free). FibroAction are a professional member of this organisation to enable us to do this, as we feel that these guides are some of the best around.

tivoloschoice profile image
tivoloschoice

Thank you lyndsey i will do that. Xx best wishes

Fermerwill profile image
Fermerwill

So sorry to hear this please fight for your Dla do not give up we are hear to support you .I too have Fibro and my Dla is due to be up for renewal soon can I say I'm scared but I will fight them all the way . Please get as much info from doc or hospital and put this in with your appeal. Good luck if I can help just give me a shout.

tivoloschoice profile image
tivoloschoice

Thank you so very much. Xxx soft hugs

Good wishes to you hope all goes well many blessings and soft hugs xx

pepperflo profile image
pepperflo

I'm just starting the process of an appeal, got an appointment at the CAB next week to help me get my recomendations together, I'm dreading it, but the way this government is treating us, making us feel like scroungers when we are in genuine pain every day all day, yet you get some that have nothing wrong with them and claim and get everything, it really makes my blood boil.

tivoloschoice profile image
tivoloschoice

i totally agree with you, i have been on DLA for the past 5 years, for the last 3 i have had a car on the mobility scheme... last year was a bad year for me health wise, i tried to get my lower rate of care increased to the middle rate, i went to appeal & to the tribunal & lost, they told me that it was in my best interest to stay has i was otherwise i might loose everything. Now i have come to re-new they have said no to everything, so now i loose my lower rate of care and the car that i have become so dependent on this last 3 years. i dont understand why they have stopped everything my claim for was completed correctly, but to me it seems as if they havnt even looked at it, that there minds were made up last year after my appeal. i feel discriminated against, angry, upset & very stressed, i feel so depressed, and i am in more chronic pain than i ever had, i take tramadol & they dont even take the edge of pain off..

tivoloschoice profile image
tivoloschoice

To so as you all know, i am fighting against this i am at this moment completing form for legal help from Carillion they are community legal advice, welfare benefits team, they are based at partnership house, regent farm road, gosforth, newcastle upon tyne ne3 3af.. telephone number 0845 456 5989.. they are really good, they helped me in my tribunal last year. it may help someone else, so make a note of the information. xxx

tivoloschoice profile image
tivoloschoice

To so as you all know, i am fighting against this i am at this moment completing form for legal help from Carillion they are community legal advice, welfare benefits team, they are based at partnership house, regent farm road, gosforth, newcastle upon tyne ne3 3af.. telephone number 0845 456 5989.. they are really good, they helped me in my tribunal last year. it may help someone else, so make a note of the information. xxx

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