just when wethink we have it bad..... - Fibromyalgia Acti...

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just when wethink we have it bad.....

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Thoughts of An Alzheimer Patient

Swirling curling

thickening fog

Ominous and dark

Watch it rise

recognition dies

Panic fear reaching

Casting about

Mind crying silently

Let me out

Eyes vacant

Hiding all

Am I still there?

Do you know I care?

Loving memories

Laughter and song

Holding tight

I remember you

Kisses hugs

Love and anger

Children’s laughter

Friend’s family

Party’s dances

These are nothing

Without you

Cruel vicious

So unkind

This dreaded

Cancer of the mind

I love you now

As I loved you then

I will my darling

To the end

(c) Petal Knee

8 Replies
beth2 profile image
beth2

my mum had this so sad to watch such a lovely kind iady go through this she could not talk ,walk or feed herself in the end life is so sad

love beth x

before i became to ill to work i worked in a care home and looked after some of the people that had been dumped there and never visited, and i wrote this after looking into their sad eyes. petal

jayjay profile image
jayjay

Hi fadedblossom,

My Wonderful Mum has Alzheimers and is now in a home ;-( it breaks my heart, your poem is so sad but so true, i get to see my mum every few weeks, i have to rely on my brother to come and get me and take me to see her as i live in london and she is in a home not far from brighton. If i dident have my illness'es my mum would be liveing with me, i have 3 sisters all healthy and none of them want the responsability, i hate the thought of my wonderful mum being left alone in a home ;-( xxxxxxxx

at least in her lucid moments she knows you love her it means a lot to them we used to get to hear what they thought sometimes when caring for them they do have moments when the know famly have been and remember them before drifting back into the past then sience but they do know at times and feel the love petal

jayjay profile image
jayjay

Thankyou xxx

My Mum does always seem to remember me when i go to visit her :-) her face lights up the the room and the love and happiness and excitement on her face says it all,it just shines through ...... :-) she will give me the most amazeing cuddles and kisses and telling me how shes missed me and been looking everywhere for me, and how much she loves me,(just like she used to before the Alzimers) out of 5 of us she always seems to remember my name and who i am, which does always makes me feel better. Maybe she remembers me because we was always the closest out of my sisters, i took mum shopping, we would go down the markets and take her to bingo, mum and dad would always come to stay at mine every christmas and also throughout the year, they never stayed at anyone elses house only mine, my mum would ring me every day sometimes several times a day or me her, i did alot for my wonderful mum and dad, as they did for me, i lost my wonderful dad just over a year ago to cancer, mum was diagnosed 2 months before dad passed away with Aggressive Alzimers, although mum had been getting forgetful for about 2yrs before the doctors kept saying no she dident have alzimers, if i could i would visit my mum everyday, but if i was well she would def be liveing with me ........ thanks petal for listening to me ramble on, really means alot to me xxxxxxx

love and gentle hugs always X

U don't ramble and I will always be here to listen petal

jayjay profile image
jayjay

Thankyou petal xxx bless you :-) x

sharonissexy profile image
sharonissexy

that bought a tear to my eye. Like you I was a carer before I fell too ill to work, also my dad had it. He deterioated so fast, so I guess, selfishly i was relieved when a heart attack got him before he could no longer remember me. Especially as carers we know the worst that this dreadful illness can do.

love to you

xxxx

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