Hi everybody

[jazher]

I just wanted to say hi to everyone as i havent been around much this week as i have been so busy then i am useless for anything at night. So i have been reading just not been upto write and replying. Hope everyone is ok.

hugs, kel xxxx

[lynz]

HIYA

hope you are well ,speek soon hun lots of hugs xxxxx

[jazher in reply to lynz]

Hi hun, yes we will hugs and love xxxx

[Hidden]

Hey Kel, gentle hugs.

I've been exactly the same as you - busy non-stop and almost burned out - but managing to read messages - just too wiped out to reply. I'm in the worst state, pain-wise, that I've ever been and tears are easily falling. As I'm on my own, I'm finding things are getting to be so much harder to do - Doctors tomorrow to ask about help from Health Visitor and contacting Social Services - I totally got side-swiped by Fibro Fog when I saw the doctor last week and could not recall what I wanted to ask him about - The 2 new meds make things worse, so will take them AFTER I have been to see him - Hopefully my head will be somewhat clear.

Love,

Carol xx

[jazher in reply to Hidden]

Hi carol,

I am sorry you are not feeling good. I do hope you manage to get some help, makesure you take a list if things you need to say and ask the doctor. What new meds are you on?

Hope it all goes well tomorrow, let me know how you get on.

hugs and love, kel xxxx

[Hidden]

Hey Kel,

Am on Pregabalin 50mg - one capsule in the morning and one at night - as of 2 months ago for pain - as I was only taking 2 Co-Codamol 30/500 up to 4 times a day for almost 20 years with barely any respite from pain. As of a month ago, I'm now on Requip (Ropinirole) and taking 1mg 3 times a day for restless legs and tremors/shakes. The doctor is going to, hopefully, put my on the full 2mg dosage, as at present things are getting worse. And loneliness is not helping matters. As I type, tears are flowing and I cannot stop them.

I have a list of reasons ready for the Doctor about why I need help and why the need to see someone from social services. I want to "go home" to be nearer my daughter and her family and am trying to transfer back there - I need to have a downstairs, 2 bedroom flat - at present am in a 3 bedroom semi that is wayyyyyy to much for me to cope with. I'm hoping someone from social services will help push for a move sooner, rather than later. But whilst I am still in this horrid house, I want someone to come sort my gardens out - front and back of the house - and also help with decorating - It's not been done since BEFORE I took on the house. Plus, I am hoping that I might get a home help as I cannot keep on top of the housework anymore.

If not for my Daughter and Grandson, I'd have quit living long before I was diagnosed. I still think about it - but won't follow through as I made a promise to my Daughter.

What a ruddy awful life us Fibromites have eh, Kel?

Take good care of yourself.

Gentle hugs,

Love

Carol xx

[jazher in reply to Hidden]

Hi carol, sorry i never knew you wrote back.

It is awful but its even more worse if you feel lonely. I really do feel for you carol.

I wish you didnt feel like that hun. Are you on anti depressants? I think you should ask your doctor for some councilling as i really think you need to talk to a professional. I went to a first step councilling and it really helped me. Its my kids that keep me going i have to get up and out what ever agony i am as i hate relying on other people. But also because i dont do any exercise i need that walk up to school as i had to give up work due this fibro and that kept my weight done. Cleaning houses of all jobs to do, i cant even clean my own now lol.

Let me know how you get on with the docs hun, good luck

hugs, kel xxxx

[Hidden in reply to jazher]

Hey Kel,

I am on antidepressants - Venlafaxine 225mg - 150mg in the morning and 75mg at night. Every time I've been for counseling I just get 1 day a week for 6 weeks - and it's never enough time - no follow up care - nothing. I find I could talk and talk and still I'd not shed the depression and how I feel. Too many in the medical profession have let me down - years ago I had a CPN who slapped me across my legs and told me to "get over it"!!?! - Like I was a bloody naughty child and NOT a depressed, unhappy - suicidal 36 year old woman - GRRRR... She packed in being a CPN to become a Health Visitor.

God, I feels so ill Kel - the pain is unbelievably relentless and this constantly falling asleep without warning is killing me.

As to my trip to the Doctors? He put me on 2mg of Requip at night for my restless less. So far they seemed to have been working in the 2 months I've been taking them. At least they will have me asleep at night - I hope!

I asked about Getting Social Services to help me get the right help I need now - And he said it was not his place but mine to get in touch with them - Not happy about that as I'd hoped that if I needed to have anyone backing me against the DLA at any given time - I could rely on the Doctor.

So Monday morning will be spent ringing Social Services and pushing for ALL the help I can get - anywhere I can get it!

Nap time now - can't keep my eyes open.

Gentle hugs,

Love,

Carol xx

[soulsusie]

Hi Kel,

I have had a crazy day, took dogs a walk and met 3 children who are leaving the village today, and the children wanted to help walk them, so they didn't get their normal walk, then I went to view a care home for my Dad, then had a PPG(Patient Participation Group) at my medical centre. I got home at 3.10 feeling completley whacked !!!!

Love, Sue x x x x

[jazher in reply to soulsusie]

Hi sue, i am not suprised your whacked i would be dead lol.

You should be resting after all that traveling shouldnt you!!!!!! naughty naughty lol.

I hope you get decent sleep to get over it all.

hugs, kel xxxx