I am a newbie, 43 year old mother of 3, please be gentle :o)
My beautiful and once very healthy teenager has spent the last year with weight loss, hair loss, severe muscle pain, Reynauds disease, exhaustion, eratic and havy menstrual cycle, back pain and nausea. After hundreds of blood tests she was finally referred to a rheumatologist, who matter of factly diagnosed Fibro. I still dont really know what "it" is, how I can help her (they said she needs 50,000 units of vit D for 8 weeks and hydrotherapy). However, she is still having to take time off of school and is having to re-sit a year to do her A levels. As you can imagine, this is becoming dpressing for her as she has days where she has to miss seeing her friends and has to give up tickets for events because she is so ill.
In the meantime I have deferred uni halfway through my degree and had to give up my job to look after her.
Firstly, and most importantly, can anyone tell me if they know of a teenager with this? It always seems to be older people. Can you tell me how they coped?
Secondly, what do you do to stop it? Especially the exhaustion and pain...she is going through pain killers like smarties :o(
Thirdly, is there any governmental financial assistance I can claim for her? the extra petrol on its own is costing me a small fortune, not to mention giving up my job.
I feel very isolated with this and could do with any help you can offer. Thanks xx