A MESSAGE TO DWP

JUST TO SHOW YOU HOW BAD FIBRO GETS, PLEASE TRY AND UNDERSTAND WE RE ILL WE NEED HELP NOT HASSLE. WE SUFFER FROM WIDESPREAD PAIN. OUR MOBILITY IS EFFECTED.AS IS OUR MEMORY. WE FIND IT VERY HARD TO CARE FOR OURSELVES. SO OUR FAMILIES BARE THE BURDEN ALL UNPAID. THIS ILLNESSS IS FOR LIFE AND THERES NO CURE. JUST PUT YOURSELF IN OUR SHOES. AND TRY TO LIVE OUR LIVES AND FEEL OUR PAIN

[bruiser]

If only one of these atos medical assessors looked at this site and understood half of what we go through, maybe we wouldnt all be chucked in the work group, how can we rest when needed in an office or a shop??????

be us for just one day

hugs for all

Lin x

[pangelina]

A DLA doctor came to my house the other day to assess my conditions to see if i was entitled to the benefit. I have fibro, arthritis in both wrists and hands, shoulder imingement, patella femoral degeneration, ibs, hiatus hernia, inflamed osophicus and depression. It's pathetic coz all of these conditions have all been diagnosed and i am on medication (which dosen't help much atall) Is all this not enough information for them when i filled the horrendous form in !!!! coz we all know that they contact your doctor to confirm everything. What they don't seem to understand is that we didn't ask to be ill and we are struggling enough with all this chronic widespread pain. It's stressful enough trying to cope, never mind feeling that you are beggng for abit of extra money to top up the crap ESA money. If we could work we would they do not realise what a srugggle life is with long term pain. And how it affects our lives completely. Angela

[boxter in reply to pangelina]

Hi Angela, i have been diagnosed with Fybro in November last year.I am also diabetic with an under active thyroid.I too had a DLA doctor to my home 10 days ago, it is 10 weeks since i put in the claim forms.I still have not heard from them.They got info from my GP and my hospital Consultant so what are we waiting for !.People do not have a clue what we feel like day to day,cos we don't look poorly.Like you say we did not ask for this dreadful incurable illness.I hope you get the help and benefit you are due to.

Carol x

[Hidden]

Hi thay is so good well done you if only they would walk or sit or stand or lay in our shoes for a day lol lets see what they would do and say then ???!!! love to you diddle xxxx

[bumblebee57]

Nice one Lally. I've often wondered if they get into these pages just to see what we're saying. People who havent had first hand experience of daily forever pain, fatigue, and everything else, dont have a clue what we go through. Or that we WONT get better. We have an INCUREABLE ILLNESS. I suppose because we "dont look sick" (unless you are in a wheelchair or on crutches etc) they automatically assume we're fit for work. We need to fight harder for what's ours. Someone's blog I read the other day, had a good idea. She's going to keep a video diary of her daily struggle. I bet even then she'll be accused of "faking it".