hi all. iam new to this ive been told... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,988 members67,154 posts

hi all. iam new to this ive been told ihave fybro and m.e, my day consists of waking about about midday take my tablets and go back to bed

paula1967 profile image
7 Replies

and sleep where it can be up to 33hs, i wake only to use the toilet and feel as though iam not with it, i sweat terrible with this but just my hair and face are wet. on wot i call good days i can be up for a couple of hours but even washing up can drain all of my energy some times i think iam going mad, my doctor doesnt seem to be all clued up on this illness so iam really please with finding this site ,PLEASE PLEASE tell me iam not the only one like this as my family dont really dont understand as i look normal x

Written by
paula1967 profile image
paula1967
To view profiles and participate in discussions please or .
7 Replies
tofty profile image
tofty

hi hun im so sorry ur so bad withFM i was diagnosed a year ago but im not as bad as u .i think u need to change yr doc ive got a great doc they r out there .u r not on yr own plz keep blogging everyone is so supportive on here it will help u thru sofy hugs Tofty xxxx

rosehip profile image
rosehip

hi, you have got it bad hun with the sound of it . you must get back

in touch with your gp if it keeps on as bad as this . soft hugs xx

sounds about right to me, I can sleep for days, just use to loo when I can, and sweat your right my hair face and neck, I told a dla tribunal about those type of days, and they didnt believe me,Im sorry youve got it so bad, hopefully this forum can get you some help

paula1967 profile image
paula1967

thanks all for answering me back, iam so pleased i found this site ha at least i know iam not going mad now,thanks again and lots of hugs x

jazher profile image
jazher

Hi paula, i am so sorry you are feeling bad. It is horrible and you just have to learn and try your best to live with it. Pacing is the absolute key but i know exactly how you feel. I have a few good patches but i do still get very bad with no idea why.

This site is brilliant for help, advice and support so you dont need to feel alone. Anything you want to ask or say do it.

hugs, kel xxxxx

paula1967 profile image
paula1967

thanks all xxx

welcome to the sight i sleep when i am stressed and having a flare up with FMS i think everyone is unique on how they feel some sleep others dont however one thing you will find is lots of support xx gentle dyslexic hugs

Not what you're looking for?

You may also like...

Hello everyone Iam back!

Good morning all my dear fibro friends! Please accept my apologies for abandoning my fluffie...
haribo36 profile image

Feeling Sad and so defeated

Morning all. I have been up all night with this awful virus on top of everything else iam feeling...
Gilly2111 profile image

where can i go for help and support other than my doctor or pain clinic

Hi. I have just came to this group. I suffer with fibromyalgia. I would be grateful for advice as i...
barb70 profile image

Hearing the sound of breaking glass

Hi all I hope your all having a great weekend About 3-4 weeks ago I was sitting in my living room...
gilly25 profile image

Hi all not been on here for over a year now . ive got my appeal on Tuesday and really stressing about it. Been waiting nearly a year. .

I know im not going to win it and just want to be left alone. I've also got depression and at the...
Andyandflo1 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.