Hi, my name is Fibromyalgia, and I'm an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.
Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.)Brain Fog.
I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn't ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma.
Well, anyway, I'm here to stay! I hear you're going to see a doctor who can get rid of me. I'm ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you'll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You'll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!
Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you're just having a bad day", or "Well, remember, you cant expect to do the things you used to do 20 years ago," not hearing that you said "20 DAYS ago"! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can't remember what you were going to say next!
In closing, you've probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People With Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.
Remember, I'm stuck to you like Velcro – and I expect we'll be together for the rest of your life.
Have a nice day!! (ROFL),
Fibromyalgia
Sorry, did it all in full. Missed the D off Dear too.
Another piece of literature that I'll use for my friends and family.
Thanks Sue. xx
oh i am so sorry but you really have made my day to day an d it only lunch time !!!
word of advice if i were you i would go sit down in a chair and tie your hands behind your back and dont do anything lol i dread to think what else may happen ?
I had a bad day last week and thought, sod it im going to get myself a bottle of wine. got it home and the contents of the bag on the table fell over and knocked my #8 bottle of wine on the floor SMASH! well the air turned blue as you can imagine and I stormed back to the shop to replace it! I gulped it down I tell ya. Thing is, my body really hurts the next day so why do I do it? lol
Re: Dear Miserable Human Being, please dont apologise for posting it, it is what we all feel like, i missed the first one so thanks for re-posting it. I am hoping you feel more able to cope today everyone. I know there is no point in saying i hope you feel better as thats what everyone who does not have fibro says, its just how we coped a certain day is what i base it on now, so for everyone here {{{{{gentle hugs to us all}}}}}}} love heavenly x
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