I have got to say, she actually cowed me into silence. She made comments that I could have used to argue with, but I felt it would not make any difference. Once I felt that she did not believe me I gave up. I DO NOT feel like giving up now and wish I had had someone stronger with me as my husband, much as I love him, is too weak to deal with this for me. I think he must have been bullied at school because he cannot speak up for himself or me and won't talk about any memories and never has. He is not generally weak though so dont think too ill of him.
I have to go into work on Monday, fill out the forms of absence and hand in the sick note for my back - oh yes, she said, sorry got to quote her here:
'Fibromyalgia is a weakness of the muscles, the symptoms can vary from person to person, but basically that is what it is and you don't have it'
This was prompted because I can cope using a wheelchair down the corridor whilst pushing a computer chair in front of me, resting my feet on the base. I have pain in my thighs all the time, but they are relatively strong, except when I try to walk far or stand for long. I have never said they are weak, but my back is getting weaker by the week. My sypmtoms are increasing and its only my meds that are allowing me to cope. Was I supposed to 'pretend' and become the sponger she seemed to think I am? Sorry, getting angry again. But you do see where I am coming from, don't you? In addition I have been having physio to strengthen my leg muscles! Oh I wish I had remembered that!
I am also lucky enough to be able to walk about an office, fairly fast - because I know I can sit at any time and often forget that I am going to need to as I am overdoing it! However, an office [tiny by the way] is a big way from walking across a classroom and being able to get back! I get stuck if I do not have a computer chair with me.
This woman has never met me before and is judging me on the paperwork in front of her. On Monday I am going to ring and ask my doctor to put my diagnosis in writing for her, whilst rearranging all the blood tests etc. By the way, who is going to pay for all of this, her? No, my doctors practice which is not fair! Maybe he can talk to the Rhuematologist and get something sorted, I don't know. I have given him permission to pass on my letter and the accompanying list of ailments - oh boy but its a long one! I don't have everything at once, of course I don't, but each needs to be noted and maybe someone medical will finally back up my doctor, whose knowledge seems to be keeping me mostly out of pain - boy I forgot my meds the other night and didn't dare take them when I remembered because I could not work out whether it was a bad night or not! Didn't want to o/d. If I was making it all up my head needs examining!
Hope life is treating you better!