anyone want to become my friend

[diane63]

i am looking for some new friends who have fibro and can understand how life effects us...

please get intouch.. i am on facebook.. diane paterson

[wendyp]

i will be need more details 2 add u on facebook

[diane63 in reply to wendyp]

i am new to this honey.... i live in edinburgh scotland and married with 3 kids.... anything else u need??? hope this finds u well xx

[Hidden]

There are loads of you lol. Which one are you?

[diane63 in reply to Hidden]

i live in edinburgh.. married and have 3 kids.... anything else u need honey...

[Hidden in reply to diane63]

Still looking for you lol, I keep being waylaid and was going to bed half an hour ago Off to look again then now.....

[chorley]

more than happy to be your friend, as Wendyp and Jules58 say, a bit more info would be nice i also keep friends with fibro seperate form my FB friends, and maybe a pic of you on your profile would be nice

CHORLEY

[dawny]

happy to add u as a friend, its good to talk more formally with other sufferers, more details needed tho xx

[diane63 in reply to dawny]

hi..... on facebook i am under diane paterson.. i am married to john.. have 3 kids..... my e mail address is.. [e-mail]... sorry i am new to this.. xxx

[Hidden]

How do you mean you keep friends with fibro separate from fb friends. Fibro fog....... ahem

[chorley in reply to Hidden]

Hi sue, all i do is my friends with fibro all use this site, i get them to send a message to my in box and dont add them to my facebook

Hope this answers your question

CHORLEY

[Hidden in reply to chorley]

Aah, I'm with you now. Thanks for that.

[diane63 in reply to Hidden]

have u tried to answer me on facebook??? sorry i am new to this xx

[diane63 in reply to chorley]

i am just new to using this and wasnt aware of how u can chat to people on here... how are u doing.. do u have fibro to???

diane xx

[Hidden in reply to diane63]

I have fibro Diane, unfortunately. x

[Sue15197]

It's a pity we cant arrange for a chat room on here, that would be ideal. All those nights we do not sleep we could be sat on our comps chatting away on how to run the World and the NHS ! lol

[diane63]

hi.. my name is diane paterson... i have had fibro for about 3 years but feel i have had it a lot longer... i live in edinburgh in scotland.. i am 48 year old.. and i am married with 3 kids... what else do u need for me to get u on my facebook ???? hope u all are well.. xxx

[diane63]

hi.. i am new to this... u said u pm me?? where???.. hope ur ok xxxx

[Hidden in reply to diane63]

Where it says messages at the top of the page, alongside blogs, questions, polls, tags etc.... Hope that helps.

[Hidden]

It's just that when I looked, there were loads of Diane Patersons and didn't know which one was you.

[diane63 in reply to Hidden]

ok.. i am on facebook now. if u want to look for me... i have a picture of cystic fibrosis beside my user name.. xxx

[wendyp]

im the same as you sue cant find you diane we need what your pic is like on facebook that may help us a bit xx

[diane63 in reply to wendyp]

its of cystic fibrosis.. my wee 1 year old godson has this disease xx

[wendyp]

i think i got you through your email have sent you message on facebook xx

sue if you want to add me my email is [e-mail] xx

[Hidden]

Got Diane now lol, I'm Sue Moorhouse was Easton. xx

[calcait]

Hi Diane, I am new to this also cannot find you on facebook too many Dianes lol if you find me you can add me on facebook Angela Gray my facebook picture has me and my daughter who has red hair hope that helps to find me and that goes for anyone on this site xx

[ldjboothby]

If anyone picks up these posts I am happy to be in contact, I'm 62 years old and now realise i have suffered from this condition since I was 35 but was only diagnosed about 5 years ago, I would like to write an article for a fibromyalgia magazine to try try and raise awareness of how it affects personal relationships as In my experience until you get a diagnosis you are likely to be thought of as neurotic---so I would like to hear from people

[diane63 in reply to ldjboothby]

well done u.. i would love to help in anyway i can ok xxx

[ldjboothby in reply to diane63]

Thank you, I will keep in touch, at the moment just finding my way around this site

[Glenys in reply to ldjboothby]

I've had symptoms since my twenties and only was diagnosed 5 years ago (now 47). I have had so many personal battles, particularly at work, and can provide you with a story or two about how my condition has been received and how I have still managed to retain a part time position there, dispite the odds.

I am one of the folk lucky/unlucky enough still peceived as "fit" because I can hold down a few hours of work, but :-

1. They do not then see how I have to recover afterwards on any bad days;

2. a lot of people who do not go to work who have FMS are encouraged to get some activity which they can cope with . In my case 21 hours of now enjoyable easy going work is my activity I can cope with. I know other people with FMS cannot do this

3. I find now that the social networking at work keeps me happy and saner than if I forced myself to stay away from work and stared at 4 walls and then went out for a walk round the block instead (which would then be the aforementioned activity that I would be encouraged to do if I wasn't working - see point 2).

I'm also Sorry to say the "neurotic" label STUCK with me after the diagnosis, because some of the kind souls who did at least make the effort to find out about the condition on-line saw the battle debating whether it is a real illness or not - great PR for our cause it seems, but can stick in the mind of some people. One girl who saw that some the symptoms were the same as ME told me about her friend who was cured of ME, therefore I could be if I put my mind to it. My manger misunderstood "managing" the condition, as being cured of it. The list goes on...

Let me know if the above helps with your article, and would be happy to tell you more if you need it if you think it will help anyone. I know it is a unique aspect as I am one of the few who seem to be able to carry on at the moment. I have many symptoms, but thankfully not all at the same time, some I think I am managing well - and I would like to share that info too.

I think my email is on my profile

Glenys

[ldjboothby in reply to Glenys]

Thank you for sharing that,if any one else needs /wants to comment /contribute to this please post on my blog site thank you

[Janie5626]

hi would like to be your friend too, am on facebook jane smart was mallaby in leicester, i too have fibro and osteoarthritis and am unable to take opiate painkillers because of horrendous side effects so have to manage with paracetamol, amytriptiline and nefopam. have tried to find you on facebook but not sure who you are, if you could find me would add you as a friend. thanx x

[Hidden]

Hi Diane ,

I've sent a friend request on FB

x

[Hidden]

If anyone wants to add me to face book my email address is [e-mail] .

I've altered my privacy settings for today so you can find me if you want to .

Helen xx

[ldjboothby]

Hi I'm quite happy to talk, at the moment I'm finding my way around this site

[Hidden]

Ive just accepted 2 of you my names usual so Imeasy to find

[magscarborough]

maggie walton im the one with an old type microphone in my hand. i set up a group for M.E and fibromyalgia on facebook

[Nance]

I'll have a look for Diane, I'm in the Highlands !

[tjball64]

Yes sure! please add me!

[fibrojude]

hello add me on fb diane ,Judy belinda cox see Secret hair boostias my logo ok , Judy

[Hidden in reply to fibrojude]

can't find you Judy, says no results......

[fibrojude in reply to Hidden]

judy belinda cox my profile secret hair boostias logo comes up

[PaulaPortela]

yes just send me a request my name is Paula Portela

[steve233]

just sent you a friend request on facebook,im a fellow sufferer of the dreaded fibro as well and i dont think there are as many males who have it

[steve233]

forgot to add if anyone else wants to add me on facebook my name is stephen lowry and i can be found online right through the night most nights. (inbetween naps lol)

[diane63 in reply to steve233]

aw so ur the one i couldnt figure out who u were lol... will add u.. ok.. hope ur well today... i have nothad sleep in 4 nights in a row this week and i am exhausted.. but... because i then feel guilty cause i am at home all day, i try to do chores and then end up suffering later with it...

[Hidden]

Hi i am not on facebook prob only person not to belol but i am on here so i think you will find alot of people will become your friend on here it is a lovely place to be so welcome love to you Diddle xxxx

[fibrojude]

join me on fb judy belinda cox

[fibrojude]

sent you a request stephen too! judy belinda cox

[amanda38]

hi Diane i will look u up in facebook i am also on it amanda headd, london xox

[Larke]

I also keep my Facebook separate, for my very close friends and family only. However, I am very active on Twitter and find that no matter what time of day/night someone, just like me with Fibro, is always awake and willing to chat.

Find me at @LDYLARKE just go to twitter and copy/past @LDYLARKE into the search and you'll find me. Press follow and send me a hello! I'll follow back.

I find Twitter far more interactive and definitely far more personal that Facebook.