Living with Chronic Fibromyalgia . - Fibromyalgia Acti...

Fibromyalgia Action UK

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Living with Chronic Fibromyalgia .

Gigi09 profile image
17 Replies

Hi,I am new here. Firstly Merry Christmas,although it's not so merry when in Chronic pain 24/7,but I managed to put a big smile on my face today when my daughter and her partner came for a hr before going to her dads for dinner.I am so glad I came across this site.I live on my own I have suffered this Hell sorry for 16yrs now Fibromyalgia is so cruel it turns our lives into the a life that I would not wish anybody,,drugs that make you a zombie,plus side effects So at lasts I can speak to Friends who understand just like life is like day after day.I hope you will be there for me.Because I WILL be there for YOU.X

N

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Gigi09
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17 Replies
TheAuthor profile image
TheAuthor

Hi Gigi09

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Gigi09 profile image
Gigi09 in reply to TheAuthor

Thank you so much it's good to know there are friends out there in middle of the night.I do try but after the years I have lost,feeling so alone,etc,etc!!Its hard but try to remain positive.

TheAuthor profile image
TheAuthor in reply to Gigi09

Please take are of yourself my friend and there is usually somebody here online at most times if you ever need a friend.

Loraine121 profile image
Loraine121 in reply to TheAuthor

Hi ken , I hope you had a nice day yesterday,

You are always so kind and caring to everyone eventhough you are in so much pain also, I really admire you and your kind words

I wish you a pain free as possible day .

Loraine x

TheAuthor profile image
TheAuthor in reply to Loraine121

Hi Loraine121

Thank you so much that is such a wonderful thing to say. I had a lovely Christmas thanks. I think I ate far too much (especially turkey) as I love it. I even managed a good sleep for a change.

I genuinely hope that you had a wonderful Christmas my friend?

All my hopes and dreams for you

Ken x :)

Gigi09 profile image
Gigi09

Thanks.

Hi Gigi welcome to forum where there will be loads of peeps to help you along the way the support you will experience is like nothing on earth.

Not as many on forum at the moment given it's that time of year but be patient the welcomes will come in thick and fast - note you've already met Ken one of our admins who has a wealth of knowledge along with other admin peeps who are all sufferers of pain as are all peeps on friendly forum and you will find all are at different stages of Fibro plus other conditions.

Questions you may have ask away and everyone will try to answer you - you will

Cry - at some of the stories you encounter and come to realise (as I did) that your pain may be bad but not as bad as others.

Laugh - again at some stories that are told even when that person is in pain

Giggle - at the funnies people post - their sense of humour is brill again even though in pain they will lift your spirits if you are feeling down

Yes you've joined a friendly welcoming forum may you enjoy the warmth it gives in one way and another.

Take care 😘🤗

Trikki profile image
Trikki

Hello and Welcome GiGi......I am pleased you have found us as well as I am sure you will realise that there is loads of stuff, info, advice but more importantly the day to day chat and giggles we have and support when we need it most......gentle hug xx

peck profile image
peck

HI Gigi09 , I'm so glad your smiling today..,.feels good, don't it?? Keep it up, seems to help even when things are not so good some of us can't get way down if we allow ourselves to and I'm one of those.I hope your pain eases and that you had a lovely Christmas. Take care Peck 🌲🌲

druss profile image
druss

Hi Gigi09, like all of fibro sufferers we try to hide the constant pain behind a smile, but glad you found us we try to help others like ourselves even just being there for each other, gentle hugs to you and all sufferers xx

Robbie138 profile image
Robbie138

Hi Gigi09 just want to say welcome and glad you found us, this is a wonderful site you need not be alone again. Take care

Merry Christmas 🤗

Loraine121 profile image
Loraine121

Hi gigi09

I know how you feel, I have had this for just over 16 years as well, it's very difficult to get the right meditation for you, it took me over 2 years of trial and error of medication and alternative therapies, I am really lucky to have a good gp who understands, I am on mega Meds , some people just don't understand , I have had people say that I will be addicted to the medication but I don't care about that as i dont intend on stopping the medication that works for me,

i don't know what you are on but if you are feeling like a zombie with some maybe you need to try something different,

I have a little boy so I know that we have to try and put on the magic face for them, I myself just found this site by mistake and it's the best mistake I have made fora long time.

I do hope that you can get something to help you that doesn't make you feel like a zombie.

All the best take care

Loraine x

rosewine profile image
rosewine

I would just like to say a big welcome to the forum. I am sure you will find you get tons of help and support on here. Look forward to your future posts.x

1499 profile image
1499

Hi There and Welcome! I've not long joined our Fibro family either but everyone who has replied has been so welcoming and helpful with what I have been going through right now. It is such a painful horrible condition but it is great to share with people who understand. I lost my husband in April so it is hard but being among my family and grandchildren really helped as I didnt want to dampen their Christmas day, and to be honest think I had shed enough tears on my own on Christmas Eve. I feel somedays just showering and getting dressed is exhausting and painful and every day is hard being in pain as you said. I get very down at times too but then I have to give myself a shake and say that there are hundreds of people much much worse off. Im waiting on a physio and pain clinic appointment, my knees and back pain affect my walking at times. I haven't learned as yet to pace myself as overdo things on a good day and many of our fibro friends say it's about pacing yourself and I need to listen to their sound advice. I do hope you feel better soon. God Bless x

lizzy0121 profile image
lizzy0121

I understand you. It's terrible. People who don't have it don't understand. I hit my finger on moving stairs hand rail other day. I screamed. People must think I'm just weak. It was horrendous pain. Happy new uearx

naturagirl profile image
naturagirl

Hi Gigi, welcome. You can always count on me. I will be there for you if you like.

I am good friend material so to speak and I always take the time to be there for people who need me.

Wishing you a good 2017 full of special surprises and better health.

Naturagirl

Gigi09 profile image
Gigi09

Hello,Sorry not been on for a while been very unwell,so please excuse me if I am not on for to long.I did try a few time to write but brain fog was so difficult I just could not concentrate. Will get round to filling all info sometime soon.A day at a time.sorry I feel as I have written a novel and it's only a few lines.Going to get my meds and go to bed.Hope to see you all tomorrow.Take care all you lovely people.Be Gentle xxxxxxxxxxx.

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