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Nortriptyline Tablet Buprenorphine Patch Fibromyalgia

Fibroguy66 profile image
Fibroguy66
β€’26 Replies

Hello πŸ‘‹

Has anyone ever trialled Buprenorphine patches or the one a night Nortriptyline tablet ?

My patch is a wearable 7 day one.

Neither of these said medication have the slightest effect on me for some reason & the pains remain the same.

Have not had any weird side effects from any of them as the companies state etc.

Any ideas for scope please.

Kindest Regards

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Fibroguy66
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26 Replies
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Badbessie profile image
Badbessie

I have been on a patch for about four years now and use cocodamol for break through pain. At first I started on 10 micrograms but found that to much and so reduced it to 5 micrograms. However due to other problems my GP on advice from the pain management people want to increase it back up to 10. My main problem with the patch is that once it's on its on and there is no way to reduce dose. I am quite happy to stay on 5 and wean myself on and off cocodamol as required.

Fibroguy66 profile image
Fibroguy66β€’ in reply toBadbessie

HiThankyou for your kind reply.

Cannot take codeine with my patches etc πŸ˜”

5mg doesn't do nothing for me sadly 😞

What a life 🀨

I use 20micrograms buprenorphine patches and buprenorphine tablets for break through pain.

Fibroguy66 profile image
Fibroguy66β€’ in reply toIamthemedicalmystery

HiHow does a 20 mg patch make you feel please

Very curious πŸ€”

Kindest Regards

Iamthemedicalmystery profile image
Iamthemedicalmysteryβ€’ in reply toFibroguy66

To be honest I actually question myself if it's a placebo because I personally don't think it works that well, maybe takes the edge off. Previously I was taking a lot of oxycodone so the pain clinic wanted to get me off them after just over a year

Fibroguy66 profile image
Fibroguy66β€’ in reply toIamthemedicalmystery

They do not work on me at all & I get no side effects off the patches.Just like nicotine patches,tried those n smoked more πŸ˜‚

Going to have words with my pain consultant for sure next week.

Thankyou for writing means alot

Lovecoffee profile image
Lovecoffee

never had any what patch for pain I take duloxtine at moment

Ayla69 profile image
Ayla69β€’ in reply toLovecoffee

I'm on 120mg duloxetine and 30 Amitriptoline, still have a lot of breakthrough pain daily, and sleep 15-17 hours a day! how it it for you?

Lovecoffee profile image
Lovecoffeeβ€’ in reply toAyla69

I’m only on 60mg duloxtine still have some pain has have osoarthrites has well, I also need sleep in day

Fibroguy66 profile image
Fibroguy66β€’ in reply toAyla69

Hi

I sleep πŸ’€ alot in the afternoons actually as the pain becomes just to muchπŸ₯Ί

Fibroguy66 profile image
Fibroguy66β€’ in reply toAyla69

Wow that's alot of sleep time

Bakery40 profile image
Bakery40

Hello Fibroguy66, hope you are managing well. I've been using buprenorphine 5mg for the past 5 years. I felt horrible for the first two weeks. Up till now I have skin reaction to it. I can put the patch only on my arms as on my chest and back skin gets infected and need antibiotics. Because of that i can only use one brand. For me it was prescribe for arthritis in my hips, which ofcourse fybro makes the pain feel worse. I'm also on pregabalin which is for fybro and my other health condition.

I don't want to increase the buprenorphine because if I do it now what is going to be in 10 - 20 years time ? My arthritis will not get better and the surgeon doesn't want to operate my hip - too risky.

So yeah speak to the GP if it's OK to increase it but remember, this is not a tablet which you can easily decrease. Think about withdrawal from it ,what if the the higher dose doesn't work either . GP will advise you or the pain clinic.

Good luck and take care.

Fibroguy66 profile image
Fibroguy66β€’ in reply toBakery40

HiPatches do nothing for my pain 😞

Nor do tablets either πŸ˜”

Bakery40 profile image
Bakery40β€’ in reply toFibroguy66

Sorry to hear that. Hope you get it under control soon. All the best.

Tjoceans profile image
Tjoceans

Doctors always say it might take time to build up in your system. I never really believed that, unless it's something your titrating up. I always think the amount of pills we take probably does more harm than good. I take pills for everything though. I haven't heard of that drug, but if it isn't working I would definitely find out if there is another. It's all hit or miss. It's really hard, especially if the doc doesn't get it. I'm fairly certain my roommate has it. He is also diabetic. He was asking for something for pain and the doc told him he needed to deal with the reality. What a bunch of BS.

Fibroguy66 profile image
Fibroguy66β€’ in reply toTjoceans

Hi

I've tried so many prescription medications & to be perfectly honest nothing takes the edge off the pain or the way I feel in my personal self.

Lovecoffee profile image
Lovecoffeeβ€’ in reply toFibroguy66

I understand how u feel I’m same my pills only take edge of

hightree profile image
hightree

Hi fybro guy hope your having a reasonable day, I have tried lot of meds, including butec patches I had 10years on 5/10 microgram came off them as I suspected the cause of nightmares, after weaning off them proved right. A few months ago pain consultant advised I try them again, I did for about 3months but felt they did not help, I continue to take nortriptyline 10mg one at night which I up to 20mg if had a couple of poor quality sleep, Dr advised I can take upto 70mg (I don't think I would consider this) for me Prescription drugs are not helpful, when I had a few different med I found it difficult to assess what was helping and what was making symptoms worse, I do feel you have to try different options and observe the effect, but I concluded after a few years of trying different meds not for me, I now only take the Nortriptyline and paracetamol when I really have to, going down the holistic route, I occasionally use a TENS have consulted osteopath, physio (privately) which I feel helps,CBD helps with mood, also mindfully of pacing myself( Which can be challenging) It is all trial and error I know but I do feel my pain levels now more manageable, wishing you good luck with your journey πŸ¦‹πŸ’œ

Patches12 profile image
Patches12

I have tried all pain relief goin .nothing works .doc can't give me anything else so I'm left in constant pain .hopefully your pain relief works

Diamondart2021 profile image
Diamondart2021β€’ in reply toPatches12

I have tried lots of pain relief too and nothing helps with pain.

LadyPenelope profile image
LadyPenelopeβ€’ in reply toPatches12

Have you tried morphine or fentanyl patches?

LadyPenelope profile image
LadyPenelopeβ€’ in reply toPatches12

Have you tried morphine or fentanyl patches?

Fibroguy66 profile image
Fibroguy66β€’ in reply toLadyPenelope

Buprenorphine patches only.Have tried all other pills n potions

Fibroguy66 profile image
Fibroguy66

Personally for me,the patches are not working at all,but there again we are all different.Kindest Regards

Diamondart2021 profile image
Diamondart2021

I take 2 nortriptyline every night, they don't work at all, I'm coming off them waste of time.

Fibroguy66 profile image
Fibroguy66

nortriptyline give me bad dreams & somewhat nightmares etc,so much so you remember them the next morning & there so vivid you could write a good book out of it all.Not for me thankyou 😞

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