More pain than I can handle - Fibromyalgia Acti...

Fibromyalgia Action UK

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More pain than I can handle

Familyl profile image
10 Replies

Hello fibro family I was diagnosed with fibromyalgia 8 months ago already in the severe stage since then my Osteoarthritis in my knee has gotten much worse after an xray diagnosis I did have a pain steroid In my knee which helped 70% but 2 weeks later I started with extreme sciatica pain on the same side as my bad knee ,I was just getting used to getting around abit better then this happened and I've been in terrible pain ever since about 3 weeks now all this pain has brought on a long fibromyalgia flare and I'm slowly losing the will to live .I'm normally such a strong and positive person but not so much lately .sorry for the pity party but I'm not coping anymore ,even though I do have support with my son who lives with me I feel bad putting all this on him as he suffers with his mental health.sorry for the long post and thanks for reading x

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Familyl profile image
Familyl
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10 Replies
NatureNurturer profile image
NatureNurturer

Sorry to hear how hard things are for you right now. I've felt much the same myself, so much pain every day that you feel like a burden to loved ones and life seems hopeless. I rely a lot on my daughter too, and worry what the strain is doing to her. She sometimes reminds me that she likes to be able to help and the anxiety she would feel if I was suffering totally alone would be worse for her. Perhaps your son feels this too? And you being there means he is also not facing his mental health issues alone. I found telling my daughter my feelings and fears really helped.... Couldn't believe how much closer we became and how much more she opens up to me too. Hope you find some comfort in this.

Familyl profile image
Familyl in reply toNatureNurturer

Thankyou for your kind reply it helps to vent sometimes and I know there's people worse off than me I feel guilty for feeling like this but I know this is a safe place to say what we really feel some days .

NatureNurturer profile image
NatureNurturer in reply toFamilyl

Venting/sharing really helps. Not just to rant but to feel connected. Pain is always worse in isolation! I try not to feel too guilty, yes there are others worse off and we feel empathy and compassion for them as we should for ourselves. Hope things get better for you soon Familyl

Deeb1764 profile image
Deeb1764

call your GP and see if they can help even if short term pain relief and it might be a battle but they would not put up with it if them. This weather is not helping me at all at the moment and I feel like I live in a permanent flare of RA and fibro.

Sending a hug

Tilly1957 profile image
Tilly1957

Maybe you can ask your gp if flecainide is a possibility to explore? Although it is a heart rhythm medication, a little known use of it, for some people with fibro, is with pain relief. If I recall, it helps if the pain is immune related. X

Familyl profile image
Familyl in reply toTilly1957

I am on pregabalin and Duloxetine at the moment but slowly weaning off pregabalin as its not suiting me I will ask doctor if he can prescribe some pain relief for the sciatica so I can at least get about without been in agony x

Tilly1957 profile image
Tilly1957 in reply toFamilyl

Feel better soon 🥰 x

Yassytina profile image
YassytinaFMA UK Volunteer

Hello, we all need too reach out here sometimes as everything can get on top of us , I’m finding this wet damp weather is making my knee and a few other places more uncomfortable , have you spoken too your doctor recently and also tell him/her how are low you are feeling right now. I think it is important for us too say exactly what is going on. Are you currently taking anything for low mood ? I’ve recently had too double my medication as I’ve found the last few months more difficult, I had a run of viral infections and il be glad when Winter jogs off, I cannot wait just too sit outside feel the warmth of the Sun and a fibro body that will feel slightly better for it. Do catch up with your doc, some lovely replies from members reaching out , we truly get it and I’m sending my best wishes too you xx

Labradoodlelove profile image
Labradoodlelove

I know exactly how you feel. I felt so good yesterday and yes because of that and because I haven’t been able to sort my garden out I went out and managed 20!mins of cutting down bushes and roses ready for new growth. Result is more pain than I can handle this morning! I’m so angry at this damn diagnosis because it’s interfering with my daily tasks. It’s another day of rain and I just feel like burying under the duvet and staying there! This is not what I wanted in my retirement years as I had so much planned. Maybe we just all need that sun on us to feel better and hopefully it will come soon. Big hug to all of you 🫂

Sarahvit profile image
Sarahvit

So sorry I know the feeling all too well. I know that is increased level of pain really effects the will to live on. This is a good place to come any find support. Sending prayers and hugs.🙏🏼 🤗 💕🥰 I have been going through a similar pain issue stemming from my back/neck for 8 months and thought I had all the pieces of the puzzle together for her but she wants to get records from the pain doctor and talk with a couple other doctors and call me back late tomorrow morning. It is hard dealing with severe pain little to no relief. My heart goes out to you.

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